Stories
Privacy
Download
See Alike in...
Alike App
Browser
718d
How did you personally overcome your internalized ableism about your EDS (especially if you use mobility aids like a cane)? Ive been really struggling with accepting that im not well and im not just being lazy for wanting to move throughout my day without pain. It really sucks and i find myself feeling so humiliated when I walk funny in the store or wesr a brace, so how do yall overcome all that?
7
6
Share
Chronic Generalized pain
Ehlers-Danlos Syndrome (EDS)
advertisement
713d
Me štooš. I donāt have much advice because I deal with this in a daily basis. I once had a person tell me that I should āwait until Iām older bc then Iād know real painā when he saw my brace. I donāt know how to deal with it and it takes too much to explain it every time. I think the answer may come from within. Maybe once I have accepted my condition, I wonāt worry about others much
3
717d
Same! I offer all the grace in the world to everyone else yet to myself I get so down on me for sleeping more or not being productive every second of everyday. I guess if we have no advise to offer itās at least helpful to know weāre not alone.
i definitely have internalized ableism to myself. I always feel like iām just being lazy and my condition isnāt real.
1
@lavap I feel like that with eds, but especially with pots
Thank you for asking this. Iām in the same boat and would love to hear from others š
I feel the same way, donāt know how to overcome it
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikenessā¢ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions