Frustrated with Rheumatologist's Diagnosis

Smh doctors suck sometimes. ME [/CFS] and fibro are not the same at all ffs 🤦‍♂️ That's like saying "Oh, lupus and Sjögren’s are the same" - absolutely not, yes they can be similar, but no, they are nowhere near the same. 😭 this is why we can't have nice things 😂😤 huge red flag of a doctor 🚩🚩🚩

I’ve never heard of them being the same but just by looking at the symptoms I guess it actually could be. I think you should talk to your primary care doctor as well. I’ve had my fibromyalgia diagnosis confirmed by my primary care doctor, rheumatologist and neurologist. I physically or mentally cannot work and it’s taking a told on me.. I haven’t started the disability process but I am soon. I haven’t fully got the treatment I need since I haven’t found the right medicine for me (if there is one) but keep pushing and keep working on it.

Also, cfs/me is the same- fibromyalgia is quite different but many if not most patients with cfs/me have fibromyalgia and possibly some other things such as IBS, POTS, and other viral related syndromes/diseases. This is because cfs/me comes in what i like to call “stacks”, stacking on a ton of other stuff with it😭. Things will get better once you’re properly diagnosed and treated. Take your time but never give up on you, you’re not alone, you’re not “lazy”, and it’s not all in your head!!! 💘💘💘💘

Switch doctors fast. The issue is moreso the way the medical industry respects (or lack thereof) cfs. Many are trained to consider it psychosomatic. Take your time, find who listens. My doctor is a woman, minority, and a DO meaning she is trained intensively and specializes in both holistic medicine & traditional medicine!! Those factors made me feel very safe. She is who diagnosed me after 1 year and 10 months of being poked and prodded by 16 other specialists who were not hearing me or helping me in at least the little ways I can be- and in only two weeks after meeting her.

I have a psychiatrist, pain management, and neuro. My neuro straight up told me he thinks it's autoimmune. I go today 2 pain management for MRI results, that I have seen already of back. So far I been there a year and have been taking loritab 10 3x and Adderall 5 2x. But I'm already acclimated 2 all of it it not working anymore. Don't want more pain meds, if I'm going 2b living like this for my whole life I need 2 wait till I'm a little older 2 get a opiate addiction. 😥

Absolutely agree on getting a second opinion. I have been diagnosed with Fibromyalgia by several doctors, but the first Rheumatologist I ever saw was dismissive and a total arse to me as well. It may take a little while to get an actual definitive diagnosis of FMS. Do you have a PCP/family doctor who can possibly refer you to a Physiatrist or other specialist? I have being seeing a Pain Management specialist for years now and have been receiving good treatment for the FMS. I wish you all the best!!