Babygirlnicole

281d

hi I'm Nicole I was born with pierre robin syndrome, just want to find some people like me.

Craniosynostosis

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  • JoBanana

    275d

    I’ve got it! It’s so rare I’ve never actually met anyone else with it. Have you?

  • Alux

    140d

    hi!! i also have/ was born with PRS!!!

  • Alux

    140d

    what were y’all’s pierre robin journeys like?

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