Kitkatkaity

266d

Has anyone else been falsely accused of faking their sezures or is it just me?

Headache

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  • AnimalBoy

    266d

    It happens to me all the time, I'm still undiagnosed because the doctor who was testing me for it was promoted and stopped seeing me but I have pretty much every sign of petite mal seizures and because they aren't as obvious as grand mal seizures and I have ADHD very few believe me now and no one believed me during childhood. Even if it's not actually seizures im still having something happen to me that makes me sick and gets in the way of me safely being able to do certain things like drive, and since no one believed me I have to figure it all out almost entirely alone. Luckily I do have a few people now and hopefully that will make attempt #2 a bit easier, I know having them as support has. You're definitely not alone though

    • AnimalBoy

      266d

      (Pressed too soon sorry) my partner's ex has been accused of faking as well and he has grand mal seizures.

  • JustRachelle

    266d

    I don’t have them but my nephew does! His mri’s doesn’t show a reason why but the neurologist did some kind of test where they attached some wires to his head and wrapped it up … they monitored him for 4 days.. and within those 4 days he had over 10 seizures… they can’t figure out why .. and he had no clear sign that he was having one except staring off

  • AnimalBoy

    265d

    that's sort of what's happening to me! I had what they ruled as a "petite mal seizure or seizure like episode" while i was in the hospital post OP and i had them notify my doctor so when I was finished healing we could start setting up testing because I have had and continue to have those episodes since I was about 8 but no one told me what they were. When I did my MRI they found no reason why and im still waiting on the rest of my testing. Same sign of just staring, then afterwards I'm more tired than usual and have a stomachache and/or headache. I have no idea how frequent they are though, it seems that unless they're very bad I don't notice the missing time unless someone tells me and I never remember the event.

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