Birdies

133d

Does anyone have both endo and PCS?

Pelvic congestion syndrome

Endometriosis

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  • Barrfamily

    133d

    Do u pcos and endometriosis

    • Birdies

      133d

      I have pelvic congestion syndrome (PCS) and endo and I'm just looking for someone to talk to about it.

      • 1lovemyheatingp8d

        133d

        I’m sorry you’re going through this 😭. I haven’t heard of Pelvic Congestion Syndrome. What are your symptoms if you don’t mind me asking?

  • Barrfamily

    133d

    I pcos and endometriosis

  • Barrfamily

    133d

    I’m sorry

  • Barrfamily

    133d

    Yes what are your symptoms I’m so sorry

  • Birdies

    133d

    I can't always tell if my general pain is from endo or PCS but some specific PCS symptoms I have are my left foot getting hot red/purple, pain with standing too long/pain with sitting too long, veins popped out in my stomach/vulva/legs/feet (mostly always the left side), numb legs/tingly legs, persistent genital arousal disorder (PGAD) - one of the worst symptoms tbh, vulvar itching, feeling full and very bloated when I go from laying down to standing and several others that are also endo symptoms. I am only 20 years old and want children so I am trying to stay away from vein sclerotherapthy and coil embolizatio...they just keep switching my bc and hoping it does something but I'm exhausted/depressed and just want relief. I sure you can both understand that feeling

  • Barrfamily

    133d

    Yep I am in my 30s I only have one ovary I was diagnosed a year ago and b4 they did my d And surgery they told me I had pcos too

  • Barrfamily

    133d

    Do u bleed heavily too

  • Birdies

    133d

    I used too, I bled from January-June straight before they finally switched my bc again and now since I switched I've only spotted/bled after sex

    • Barrfamily

      133d

      I had that issue too they switched my birth control and did the d and c I still have lot of pain just No bleeding

      • Birdies

        133d

        same, that's my only symptom that went away with the new one

    • Barrfamily

      133d

      I hope you feel better soon

      • Birdies

        133d

        thank you, means a lot to let me talk about it

  • Birdies

    133d

    Does it hurt for you to push on your uterus area? I think it's an endo symptom but not sure, the spot that hurts to touch has been hurting without touching it lately

  • Birdies

    133d

    I've never been officially diagnosed through a lap with endo (I have with PCS through a CTV scan) they assume I have it because it runs in my family and I have all the main symptoms (tmi but my grandma had blood clots the size of baseballs that would clog the toilet)

  • Emmyyy

    132d

    I have endo! I don't have pcs but I know people that do and I know it is UNBEARABLE. Both are very sucky to have, my cat helps with my endo he pushes on my stomach.

    • Birdies

      129d

      does it hurt when he pushes on your stomach? It hurts to push on my lower left side, wondering if it's an endo symptom

      • Emmyyy

        129d

        It definitely hurts but it's not unbearable but also everyone has different pain management..it's like a massage where you feel like the massage didn't help and then you feel better!!

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