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Managing Health and Preventing Dislocations/Subluxations

theythem

681d

How do you stay active and healthy while managing symptoms and preventing dislocations/subluxations?

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Ehlers-Danlos Syndrome (EDS)

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Top reply
    • Ornith

      675d

      @Ark1 I agree with this. I mix 2 sets of 3-5 standing exercises with 5-8 minutes of seated cardio. I have a little elliptical that you can use seated. I also do resistance exercises with resistance bands. I aim for four times a week, but usually get to about two.

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    • Ark1

      677d

      Some days all I can control is my diet. Other days, I do laying down exercises from bed or pedal bike lying down. There are some good you tube videos about these kinds of exercises, which I wish I would have known about earlier. You can wear braces to help support your joints and still get a little sweat on

      3

      Reply
      • Ornith

        675d

        @Ark1 I agree with this. I mix 2 sets of 3-5 standing exercises with 5-8 minutes of seated cardio. I have a little elliptical that you can use seated. I also do resistance exercises with resistance bands. I aim for four times a week, but usually get to about two.

        1

        Reply
    • boatmaker57

      678d

      Honestly I've only been able to bike or walk without dislocating.

      1

      Reply
    • Luvybuggue

      681d

      I personally try and stay active on a day I have a lot of spoons

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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