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RainbowKai

493d

I haven’t been officially diagnosed with POTTS but we wonder if I have it. My heart rate gets up to like 185 and I’m constantly dizzy, sometimes passing out. My breathing is usually fine but I’m passing out like 6 times a week, is this normal? Could it be Potts? Could it be my anxiety or something else? Just trying to find answers.

Top reply
    • Sadchemist

      493d

      I would start by asking for a referral to a cardiologist to rule out any issues with your heart itself. If the cardiologist doesn't find anything, ask for a referral to a neurologist for autonomic reflex screening. If your PCP refuses to send the referral, ask for that refusal to be documented. I'm so sorry you're having to fight for proper care. Good luck ❤️

    • Entropyluna

      492d

      It could be both POTS and anxiety, but don't be afraid to bring it up to a doctor. Let them know that you have constant issues with fainting, but that it doesn't seem to be related to anxiety. Be as honest as possible with them, because they can help you determine if it's POTS, anxiety, or something else.

    • PrincessCheese

      492d

      I feel it could be pots. Request a tilt table. Pots symptoms can be triggered by anxity so I find it difficult to know what’s what

    • Kyesenrae

      492d

      Could be postural hypotension

    • Wednesday_7

      492d

      Definitely getting and electrocardiogram and echocardiogram could help rule out a structural issue. It’s definitely not normal and I doubt it’s just anxiety. It could be pots, but if your heartrate and passing out isn’t always linked to orthostatic changes I suggest looking into other forms of dysautonomia. Anyway, 100% seeing your GP or a cardiologist.

    • Sadchemist

      493d

      I would start by asking for a referral to a cardiologist to rule out any issues with your heart itself. If the cardiologist doesn't find anything, ask for a referral to a neurologist for autonomic reflex screening. If your PCP refuses to send the referral, ask for that refusal to be documented. I'm so sorry you're having to fight for proper care. Good luck ❤️

    • chlochlox

      493d

      have you had this checked out love? it sounds like POTS to me but anxiety could also be contributing. am not a doctor though so deffo get in contact with you gp x

      • RainbowKai

        493d

        @chlochlox we haven’t checked it out yet as I have other health issues we are working through and I just recovered from a major surgery. I just have no clue where to start as my primary doctor doesn’t believe me.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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