See Alike in...

Alike App

Browser

Finally getting tested for EDS after 2 years of trying!

rj.crow

499d

I finally have a referral to a geneticist who tests for EDS. They haven’t called me yet and I can imagine they have a decent wait, but holy crap it’s finally happening!! My doctor and I have been trying to get my insurance to cover this for 2 years. Idk y’all I’m just so relieved.

2

4

4

Joint pain

Multiple & Ill-Defined Dislocations

View all
Top reply
    • rj.crow

      496d

      @Student_girl I’m excited to finally have the answer. My doctor looked me in the eyes and told me I’m not crazy and I straight up sobbed 😂

      0

      Reply
      Chat
    • Student_girl

      498d

      Getting diagnosed is heartbreaking f and a giant releif at the same time. I got diagnosed almost 3 years ago. It is heartbreaking to know for sure that what’s wrong with you is forever, but a releif to know you’re not crazy. Good luck!

      1

      Reply
      • rj.crow

        496d

        @Student_girl I’m excited to finally have the answer. My doctor looked me in the eyes and told me I’m not crazy and I straight up sobbed 😂

        0

        Reply
    • JustRachelle

      498d

      Is this something you brought up to your doctor or did they recommend? I think I need to have this testing done as well.

      1

      Reply
      • rj.crow

        496d

        @JustRachelle I sort of gently guided my doctor to the conclusion that I probably have EDS. Thankfully that didn’t take long and as it turns out she really respects the research I did. You could absolutely ask for the referral and if they refuse, tell them to mark that in your chart and get a printed copy. It may take a bit for insurance to be willing to cover it if you haven’t had autoimmune tests, so a rheumatologist could help with that.

        0

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion