In your experience, does chronic illness get better or worse as time goes on? I have fibromyalgia and I wonder if I’ll ever be able to do the things I used to do
Chronic Generalized pain
In my experience, it doesn't really get better, I just learned to adapt a bit and not push myself too hard. I never know when something I do today will leave me in bed tomorrow, so I don't do too much honestly
In my experience it does get better. It takes a lot of time and patience and work and money to find what works because we are all different. And we will always have flares. But our baseline level of health/illness can improve. I’m happy to share what I’ve tried and what has worked. My DM’s are always open.
From my experience with fibro, it doesn't get better. If you take your meds (once they get them figured out) it gets to the point of being a new normal.... unless you have a flare up (those suck)
I've had fibro since I was 13 (28 now) and I feel like there are periods of time that are worse and periods where I'm a little more functional. All in all though I've never been able to treat my symptoms to a point where I feel like I'm "better". With me, it's always been a struggle but you learn to work around it.
My progression has gotten worse
My progression has gotten better. I’m learning that I have to adapt to a new lifestyle (my fibro is severe tho). Prayers!
I have Fibro and Lupus. Was diagnosed with Fibro at 29. I'd been having symptoms since I was about 15. I was diagnosed with Lupus about 4 years ago. Symptoms for 20 years before being diagnosed.
I haven't taken any Fibro or Lupus medications. I do thorough research on side effects. So, the only medication I take for Lupus is HCQ. I have found, it helps a lot. I take it at 200 MG 1 time a day for about 3 to 6 months at a time. I have my eyes checked as thats a side effect as far as causing blurred vision (but so is Lupus & Fibro) so I beak from it twice during the year most times. It has helped with my rash outbreaks. Otherwise. I take all herbal supplements and minerals. At 49. I'm more mobile and functional than my 30 year old healthy daughter. I love my cbd/hemp oil. I can be having a flare & take that and within 30 min I feel so much better. I read where so many state they can't do stretches. I wont lie. In the beginning. It did hurt. But thank God for whoever invented bio-freeze. 🙏 I took it easy and slow. I wake up every morning before getting out of bed, and do light stretches. Once I'm up, I do a few more. I walk every morning and evening weather permitting. I don't walk for miles lol a cpl of blocks is about it. I started very slow. Now I have a good pace. I stand for hours meal prepping & working in the kitchen. I clean my home, take care of my 10 year old adhd grandson. Now don't get me wrong. There are times, I hurt. I don't do as much and I listen to my body. As soon as it says, *hey....slow down* that's what I do. I also, detox every 6 months. My 1st detox...omg I thought I wasn't going to be able to finish it lol but afterwards my mind and body felt so much better.
If you want to chat sometimes. I'll be happy to do so. ❤️ don't think just because others don't feel better or do better. That will be your condition too. We are all different. Best wishes. 🙏💕
I would love to hear more about the supplements you take and the detox you do. My fibro pain is mostly under control these days except during flares, but I still have other symptoms I’m looking to improve and looking to take as few prescriptions as possible. I do take lyrica and low dose naltrexone currently and that combination was amazing for my pain among dozens of lifestyle changes and routine iv hydration.
Pacing and learning how to live without treating myself like I'm abled bodied has helped me a lot, I've learned I have my needs and to put them first and advocate them, I always try to do my best to be kind to myself and thats helped a bit. I used to be in denial about it and push myself too hard and it caused me to get a lot worse. Be kind to yourself ❤️ seems lame but pacing really has helped, and knowing that rest IS productive and that lazy doesn't actually exist when you think about it. Everyone has reasons to need rest, ours are just more strict and have worse consequences if we ignore it. Much love to you and I send you extra spoons ❤️❤️
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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