Rainbowrays2022

346d

Hello! I’m Vanessa. I just had my MVD in November and I had an allergic reaction to the glue used to close my skull. So I had to have another surgery to clean and put new metal plate in my head. I was wondering who feels like giving up on life? I have so many complications. Like I know I have to live with this alone. I fear growing old with this.can anyone relate?

Chronic Backache

Trigeminal Neuralgia (TGN)

Fibromyalgia (FM)

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  • ForestGypsy

    346d

    Every day! I can totally relate.

  • Rainbowrays2022

    345d

    Oh yeah? I talk about it openly on Facebook but no one seems to care. Trying to bring awareness to Trigeminal neuralgia and also trying to do online business. I swear. No one likes nor comments on my post unless they saying I’m crazy I need Jesus or all I need is good d***.. all I get are men being sexually explicit with me. I lost everything due to my disability and no one seems to care.

  • Tiara

    337d

    So sorry to hear that. I have trigeminal neuralgia too and it is definitely debilitating. What do you do to find joy?

  • Mickeysailaway

    332d

    I’m so sorry about all of that happening! I have trigeminal neuralgia too and it’s so hard to keep going some days! I just found out I have lupus on top of fibromyalgia and TN. 😣

  • Moxiegirl

    322d

    ❤️

  • Rainbowrays2022

    319d

    Omg you guy! Does anyone go to the facial pain association support groups?

  • Rainbowrays2022

    319d

    Sorry for the later response. I’ve been working 7 days a week

  • Jarka

    253d

    I had the same, caused a pretty decent infection because it wouldn't heal. 90 days of IV antibiotics and an encephalopathy reaction to that latter and still hurts pretty regularly. It is extremely isolating. Moment to moment. That's how I deal, but it hasn't been super effective. I hope you find something that gives you some relief.

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