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486d
anyone who also has non epileptic seizures, have you found a trigger/s? i can't find one, the only thing i can kind of find is if im feeling a lot of any emotion. whether i'm really happy or really angry or really excited. anybody else?
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Lethargy
Acute lethargy
Generalized pain
Propranolol
Anxiety (Including GAD)
Disorders of The Nervous System
Psychogenic non epileptic seizure
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451d
Physical activity, screens, harsh lighting, being tired, loud noises, sometimes eating, sometimes repetitive movements like foot tapping, and worrying about the seizures actually brings them on sometimes. Then doing anything but laying down watching tv makes them get worse once they’ve started
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474d
Oh lots of triggers sudden loud noises being surrounded by lots of people unable to get pain under control, flashing lights and car horns shop alarms overstressed 😢
Too much or not enough sugar, stress, fatigue, anxiety, crowds, and not enough to do
484d
For me crowds and noise and stress/anxiety are my main triggers, as well as being tired from lack of sleep. Hope this helps!
479d
@Ashtonn thank u!!!
485d
i have this! no set triggers but too much of one emotion and im off. i view it as because our brain functions differently,, we feel too much of one emotion regardless of whether it’s positive or negative and our body cant cope. pacing yourself is key 🫶
@ohswear thank you so much!
I’ve finally found someone else who has this though! I’ve never met anyone else like me before. How are you doing? I’ve only just been diagnosed and the doctor said he can’t guarantee I will ever be completely better I hate not knowing how I’m gonna be one day to the next :(
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@Beckboop im doing okay thank you! my doctor said the same thing and it's really heartbreaking to hear things like that. but pls know im here if you ever wanna chat xxx
@fndandme yeah it’s been horrible can’t lie. Can I direct message you? I feel like we might be able to relate 🙂
I’ve found feeling this sort of zoned out feeling triggers it for me. I’m not sure if it’s anxiety, dissociation or fatigue
@Beckboop Oh and also propranolol helps me with that because when I zone out my heart rate gets really high for some reason :/
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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