Struggling with MS Diagnosis and Treatment

Sorry to hear how tough it’s been and still not getting relief…! Just want to add another YouTube resource - neurologist Dr Brandon Beaber has many videos on all aspects of MS treatment. He covers medications, diet etc etc

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The first year around diagnosis can be tough, but you are not alone! I also had my first two half doses and scheduled for my full one in May. Sending you good vibes! 💪🏼

Thank you ❤️ I’m limited on emotional support from my family. 🤗 this is scary.

I agree, keep asking for help when you need it and don’t feel like you’re annoying your neuro/ms nurse with any questions or concerns you’re having. If you feel as though these symptoms that have come up can be handled by an additional medication, therapies, etc., advocate for yourself! That’s what they’re there and being paid for. There’s tons of great channels on YouTube that really helped me at the beginning of my diagnosis. Aaron Boster has videos about almost everything to do with MS which helped me at the beginning when I didn’t know what the heck I was doing. The year after your dx is such a massive adjustment period but I promise it will get better with time. Take it slow and be gracious to yourself, it’s a massive life change that none of us are prepared for. Our resilience continues to grow stronger in the low periods even when we don’t recognize it in the moment. And if you need a bit of extra help getting through (who doesn’t!) I highly recommend seeking mental health support as early as you can if available to you. That’s something I wish I did since my dx a year and a half ago. Sending you all the love. You’ve got this. ❤️

The difficult thing with MS is getting to know your body and what symptoms are MS related and what symptoms are just normal everyday stuff…in the beginning I literally tracked everything (migraine days, nights when I didn’t sleep well, med changes, pain, etc)…I think that helped me in my first few years as my doctor and I assessed and treated and figured out the right balance of meds. Now I am very familiar with my MS symptoms, when they will flare up (usually weather or stress related), when they are serious, and when something is new or truly doesn’t feel right. You will learn with time and it will get easier. But trust yourself and your instincts, advocate with your doctors, change doctors if you are unhappy, track as much as you feel necessary, and take it one day at a time. I am really enjoying this app and it has been a huge help to me, so keep reaching out and asking for help. You are not alone!

🙏 It is going to be okay.