does anyone here have diagnosed hEDS? I suspect that I have it, especially now after being diagnosed with autism because I read that autistic folks have a much higher likelihood of having hEDS, too.
can you tell me what it's like, like what symptoms you have?? I think I have maybe all but one or two of the hypermobile-type criterion, pretty much everything but the actual hypermobility.
I have heds, have you had a look at the diagnostic criteria? And the behiton scale. I'm quite sever for those with heds due to multiple co occurring but would be happy to answer questions
i’m in the same situation as op, could i also ask a question abt eds? how do i go in to the doctor and bring up that topic or those symptoms i have many but there’s not outwardly severe so i’m 21 just now figuring it out
write down all the things your experiencing and then ask for a rhymotology referal (if this is most relevant to your symptoms) is generally the first step v
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
kaleiceia
67d
does anyone here have diagnosed hEDS? I suspect that I have it, especially now after being diagnosed with autism because I read that autistic folks have a much higher likelihood of having hEDS, too.
can you tell me what it's like, like what symptoms you have?? I think I have maybe all but one or two of the hypermobile-type criterion, pretty much everything but the actual hypermobility.
3
6
Share
Autism Spectrum Disorder (ASD)
Chronic Pain in foot and toes
Ehlers-Danlos Syndrome (EDS)
Teal100
66d
2
AspieWriter6390
65d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision