kaleiceia

67d

does anyone here have diagnosed hEDS? I suspect that I have it, especially now after being diagnosed with autism because I read that autistic folks have a much higher likelihood of having hEDS, too.

can you tell me what it's like, like what symptoms you have?? I think I have maybe all but one or two of the hypermobile-type criterion, pretty much everything but the actual hypermobility.

Autism Spectrum Disorder (ASD)

Chronic Pain in foot and toes

Ehlers-Danlos Syndrome (EDS)

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  • Teal100

    66d

    I have heds, have you had a look at the diagnostic criteria? And the behiton scale. I'm quite sever for those with heds due to multiple co occurring but would be happy to answer questions

    • moonwxtcher

      65d

      i’m in the same situation as op, could i also ask a question abt eds? how do i go in to the doctor and bring up that topic or those symptoms i have many but there’s not outwardly severe so i’m 21 just now figuring it out

      • Teal100

        65d

        write down all the things your experiencing and then ask for a rhymotology referal (if this is most relevant to your symptoms) is generally the first step v

  • AspieWriter6390

    65d

    I’m getting tested for it next month.

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