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715d
Had anyone gotten an ovarian vein embolization or other treatment from an interventional radiologist?
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Diffuse connective tissue disease
Generalized pain
Pelvic congestion syndrome
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678d
I have I had 15 coils placed in gondal veins bilaterally š
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702d
Okay thank you because someone told me the neck and I started to freak out. I see the vascular surgeon right after. I'm really hoping they find something because I've been struggling pain wise. Not sure if anyone else has this symptom as well but my feet turn purple, sometimes just my left one and my right stays pale.
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701d
@Birdies My feet do the same but itās both for me, Iāve had this symptom since I was like 12! Itās crazy how many times it was written off as ābad circulation/not concerningā my GPs but itās my understanding that itās a PC symptom
I'm having a CTV done this Thursday and am very nervous. Does anyone know where they insert the contrast?
@Birdies I was super nervous too, but it went really quickly and was easy and painless. I didnāt even have to go into the big machine it was a small ring I was pulled in and out of laying flat on a bed
@Birdies I just had an IV line and they have you hold this bar to keep your arms up. The contrast was added to my IV electronically from a machine and it feels weird- like a hot sensation moving through your body. They Told me I would feel like I was going to P my pants, but I had just Peed before I went in and for me it was more of an almost burning sensation in my bladder but it only lasts for a few seconds
@RonJohnson šthe IV line was just a typical one in the arm
709d
Also, QueenLady, a pelvic floor specialist is not the best for PCS. I would speak to at least one vascular specialist. Theyāll do a CTA (special type of CT scan) &/or a diagnostic venogram (minimally invasive procedure)
708d
@HeyReese thank you!
Curious too! Iām about to get one this month š¬. Iām super nervous because I have an autoimmune disease & I canāt find any medical studies regarding coil migration in the long term
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711d
Also curious on whether anyone has had ovarian vein embolization!
@QueenLady I am going to get one and will let you know how it goes! I have an MRI with contrast this Monday and will be getting the procedure ASAP after
@RonJohnson good luck!! Itās my understanding that this is the only effect long term treatment. Iām on the pursuit of finding a place that does this. My OBGYN referred me to a pelvic pain clinic and I canāt get in there until November! Sadly I donāt I even think thatās where I need to go :/ will be scheduling an appt with my general practitioner to see about other options
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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