was wondering what other diagnoses people ran into first before getting an EDS diagnoses currently starting that but already stopped on a couple road blocks of course and i’m a full time college student so i’d like to have a good chunk done after this semester and before next semester rolls around
I went to neurologists before getting to a specialist who insisted the pain had to be in one certain place and wasn't possible to be everywhere so I must've been lying and prescribed me heavy antidepressants
Fibromyalgia for me. Also have diabetes, thyroid, multiple digestive and spinal issues, and a very rare autoimmune issue, as well as several not so rare
They thought all my problems were due to muscle weakness, hypotonia. Nobody ever seemed to wonder WHY my muscles were so hypotonic until I saw an orthopedist for my "carpal tunnel." She felt my wrist bones and said "Whoa, they are NOT supposed to feel like that."
I got mine at the same time I was getting my fibromyalgia diagnosis. I happened to be wearing shorts and my rheumatologist saw stretch marks behind my knees, aka where they shouldn't be on a relatively skinny teenager. After her asking me a few more things, like how much I could bend my elbows, she diagnosed me with EDS right then and there. Before that all I had on my chronic illness championship belt was some depression and anxiety.
I have stretch marks behind my knees and always been relatively thin as well! Never crossed my mind to ask my dr about it but now I certainly will. Thanks for sharing 💛
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Brax
335d
was wondering what other diagnoses people ran into first before getting an EDS diagnoses
currently starting that but already stopped on a couple road blocks of course
and i’m a full time college student so i’d like to have a good chunk done after this semester and before next semester rolls around
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Anxiety (Including GAD)
Chronic Tachycardia
Depression
Diabetes Type 2 (T2D)
Generalized pain
Anemia
Fibromyalgia (FM)
Ehlers-Danlos Syndrome (EDS)
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision