See Alike in...

Alike App

Browser

TwistItTwice

734d

was wondering what other diagnoses people ran into first before getting an EDS diagnoses currently starting that but already stopped on a couple road blocks of course and i’m a full time college student so i’d like to have a good chunk done after this semester and before next semester rolls around

Top reply
    • Blinky

      729d

      @madd94 ofc!!

    • Blinky

      731d

      I got mine at the same time I was getting my fibromyalgia diagnosis. I happened to be wearing shorts and my rheumatologist saw stretch marks behind my knees, aka where they shouldn't be on a relatively skinny teenager. After her asking me a few more things, like how much I could bend my elbows, she diagnosed me with EDS right then and there. Before that all I had on my chronic illness championship belt was some depression and anxiety.

      • madd94

        731d

        @Blinky I have stretch marks behind my knees and always been relatively thin as well! Never crossed my mind to ask my dr about it but now I certainly will. Thanks for sharing 💛

    • Avery_18

      732d

      I was recently diagnosed with POTS which I have heard goes hand in hand with EDS we noticed because of my severe tachycardia

    • AngelArson

      732d

      got diagnosed with jhs (joint hypermobility syndrome) and costochondritis and ibs and unlabeled heart issues before my EDS diagnosis

    • Student_girl

      733d

      They told me that “people don’t dislocate that much” and I was making it up or being dramatic. Turned out I wasnt

    • Strawberrybee

      733d

      They thought lupus for me first.

      • madd94

        731d

        @Strawberrybee Me too. Came very close to accepting the diagnosis despite it never feeling right.

    • lucky777

      733d

      ligamentous laxity is what they thought it was first for me

    • ChiariChick

      733d

      I got diagnosed with chiari pots two unknown autoimmune diseases from the eds

      • ChiariChick

        733d

        @ChiariChick I also have many other conditions.

    • Delirium

      733d

      They thought all my problems were due to muscle weakness, hypotonia. Nobody ever seemed to wonder WHY my muscles were so hypotonic until I saw an orthopedist for my "carpal tunnel." She felt my wrist bones and said "Whoa, they are NOT supposed to feel like that."

    • crunchyoddball

      734d

      Fibromyalgia for me. Also have diabetes, thyroid, multiple digestive and spinal issues, and a very rare autoimmune issue, as well as several not so rare

    • Lilac_Night

      734d

      I went to neurologists before getting to a specialist who insisted the pain had to be in one certain place and wasn't possible to be everywhere so I must've been lying and prescribed me heavy antidepressants

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion