Brax

335d

was wondering what other diagnoses people ran into first before getting an EDS diagnoses
currently starting that but already stopped on a couple road blocks of course
and i’m a full time college student so i’d like to have a good chunk done after this semester and before next semester rolls around

Anxiety (Including GAD)

Chronic Tachycardia

Depression

Diabetes Type 2 (T2D)

Generalized pain

Anemia

Fibromyalgia (FM)

Ehlers-Danlos Syndrome (EDS)

View all
  • Lilac_Night

    335d

    I went to neurologists before getting to a specialist who insisted the pain had to be in one certain place and wasn't possible to be everywhere so I must've been lying and prescribed me heavy antidepressants

  • crunchyoddball

    335d

    Fibromyalgia for me. Also have diabetes, thyroid, multiple digestive and spinal issues, and a very rare autoimmune issue, as well as several not so rare

  • Delirium

    334d

    They thought all my problems were due to muscle weakness, hypotonia. Nobody ever seemed to wonder WHY my muscles were so hypotonic until I saw an orthopedist for my "carpal tunnel." She felt my wrist bones and said "Whoa, they are NOT supposed to feel like that."

  • ChiariChick

    333d

    I got diagnosed with chiari pots two unknown autoimmune diseases from the eds

    • ChiariChick

      333d

      I also have many other conditions.

  • lucky777

    333d

    ligamentous laxity is what they thought it was first for me

  • Strawberrybee

    333d

    They thought lupus for me first.

    • madd94

      332d

      Me too. Came very close to accepting the diagnosis despite it never feeling right.

  • Mj_and_Otis

    333d

    They told me that “people don’t dislocate that much” and I was making it up or being dramatic. Turned out I wasnt

  • AngelArson

    333d

    got diagnosed with jhs (joint hypermobility syndrome) and costochondritis and ibs and unlabeled heart issues before my EDS diagnosis

  • Avery_18

    333d

    I was recently diagnosed with POTS which I have heard goes hand in hand with EDS we noticed because of my severe tachycardia

  • Blinky

    332d

    I got mine at the same time I was getting my fibromyalgia diagnosis. I happened to be wearing shorts and my rheumatologist saw stretch marks behind my knees, aka where they shouldn't be on a relatively skinny teenager. After her asking me a few more things, like how much I could bend my elbows, she diagnosed me with EDS right then and there. Before that all I had on my chronic illness championship belt was some depression and anxiety.

    • madd94

      331d

      I have stretch marks behind my knees and always been relatively thin as well! Never crossed my mind to ask my dr about it but now I certainly will. Thanks for sharing 💛

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