Stories
Privacy
Download
See Alike in...
Alike App
Browser
734d
was wondering what other diagnoses people ran into first before getting an EDS diagnoses currently starting that but already stopped on a couple road blocks of course and i’m a full time college student so i’d like to have a good chunk done after this semester and before next semester rolls around
4
14
Share
Anxiety (Including GAD)
Chronic Tachycardia
Depression
Diabetes Type 2 (T2D)
Generalized pain
Anemia
Fibromyalgia (FM)
Ehlers-Danlos Syndrome (EDS)
advertisement
729d
@madd94 ofc!!
1
731d
I got mine at the same time I was getting my fibromyalgia diagnosis. I happened to be wearing shorts and my rheumatologist saw stretch marks behind my knees, aka where they shouldn't be on a relatively skinny teenager. After her asking me a few more things, like how much I could bend my elbows, she diagnosed me with EDS right then and there. Before that all I had on my chronic illness championship belt was some depression and anxiety.
0
@Blinky I have stretch marks behind my knees and always been relatively thin as well! Never crossed my mind to ask my dr about it but now I certainly will. Thanks for sharing 💛
2
732d
I was recently diagnosed with POTS which I have heard goes hand in hand with EDS we noticed because of my severe tachycardia
got diagnosed with jhs (joint hypermobility syndrome) and costochondritis and ibs and unlabeled heart issues before my EDS diagnosis
733d
They told me that “people don’t dislocate that much” and I was making it up or being dramatic. Turned out I wasnt
They thought lupus for me first.
@Strawberrybee Me too. Came very close to accepting the diagnosis despite it never feeling right.
ligamentous laxity is what they thought it was first for me
I got diagnosed with chiari pots two unknown autoimmune diseases from the eds
@ChiariChick I also have many other conditions.
They thought all my problems were due to muscle weakness, hypotonia. Nobody ever seemed to wonder WHY my muscles were so hypotonic until I saw an orthopedist for my "carpal tunnel." She felt my wrist bones and said "Whoa, they are NOT supposed to feel like that."
Fibromyalgia for me. Also have diabetes, thyroid, multiple digestive and spinal issues, and a very rare autoimmune issue, as well as several not so rare
I went to neurologists before getting to a specialist who insisted the pain had to be in one certain place and wasn't possible to be everywhere so I must've been lying and prescribed me heavy antidepressants
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions