See Alike in...

Alike App

Browser

Rucubix

809d

Hey! I'm having trouble getting a diagnosis right now and my symptoms (of what I and my therapist suspect of hEDS) is getting worse and worse over the course months . i was wondering if anyone had tips to slowdown the pain spread while I wait to see my PCP? it's been a year and half since my pain started in my arms/hands and has spread down to my hip/legs. it feels like there's a bubble of air in my hip that I'm always trying to pop but it's just really painful when i try to pop my muscles to get at it or walk. i can't super walk most days unless I rest for maybe a week, then i get a good 15 minutes worth of walk time before it gets painful. i did PT and OT but it made my pain way way way worse for me, which makes me sad cause i really wanted it to work :( i bring this up because life is very stressful when the pain keeps spreading - but not being able move, gaining weight from not moving, and being in pain all the time is honestly my main stressor right now. if anyone has any advice I would appreciate that so much!

    • MangoPeach

      807d

      I would look for a geneticist

    • kjuliannaa

      809d

      Hello lovely, so I knows hEDS you can Google diagnostic criteria and that will help. I'm not sure on how to slowdown the process. I waited to long to see a pain specialist bc my bad experience with one but I finally found one who helps. If you ever need a friend to talk to about your feelings I'm here!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion