erinjaeger

41d

For years I’ve had this sensation when I was really tired. It used to happen a lot but not so much anymore. So it’s physical not mental but it feels like my entire body is moving up and down. Like a wave inside my body slowly moving up and down. My doctors have no idea wtf I’m saying and I just need someone to please say they kinda understand🥲

Drowsiness

Cataplexy & Narcolepsy

Lethargy

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  • alliillaalli

    41d

    I understand!! I feel that way when I get too sleepy, also sometimes it looks and feels like the room around me is "waving" up and down or in and out in the same way, just this weird radiating sensation that travels around the body, very strange. The closest I could find to it being listed as a symptom was sleep drunkenness though that doesn't exactly describe it. I think it's just one of those things that narcoleptics experience that no one else does, like hypnogogic hallucinations while "awake." We get to be awake and asleep at the same time and I don't think anyone fully knows yet what that causes, but it definitely does cause a wave feeling like that for me too!! You make sense! The doctors just haven't caught up yet.

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