Good morning. My name is Lonchell.
Has anyone experienced a pneumothorax
yes i have experienced two
I've had three. Do you get short of breath at times?
yes even after the pleurodesis however it's not the sharp pain
Sometimes it feels like the pressure from over eating pushing up on my diaphragm or elevation , it's hard to tell. My pulmonologist isn't helpful
Ok, I thought I was overthinking. I feel pressure from time to time
yeah i overthink a lot. It's honestly PTSD for us so it's hard to clear our mind from thinking things are wrong
any other questions? Did you find it difficult sleeping on your back or stomach sometimes? When i sleep on my back i usually experience more of the chest weakness feeling and stomach issues
I've noticed while sleeping on my back; that it feels as if my chest is caving inward, and breathing feels like I'm underwater
yes that's how i feel sometimes. Did it ever go away fully?
Do you have alpha one anti-tripsin deficiency disorder?
I’ve had 5 pneumothoraxes from age 24 through age 42. After 3 on one side doctors will want to staple that lung to prevent future collapse on that side. I smoked all my teenage years and into adulthood. After I had my lung stapled I never had another collapse. I did continue to smoke but eventually quit when I was diagnosed with emphysema. Smoking sucks and has adversely affected my life but I blame myself.
that's very unfortunate but I'm glad you haven't had any more issues. Smoking is very detrimental, I'm glad you were able to quit. I never smoked so it was very odd how i had 2
Thanks Wess. At 24 my doctor told me I was a “statistic”. I was a young, tall, slender female. With each lung collapse my chances increased by 25%, then 50%, then 75%, etc. I felt like a walking, ticking (and smoking) time time bomb!
Thanks for sharing your story. It's wild how your life can change in a blink of an eye
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