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Lonchell

612d

Good morning. My name is Lonchell.

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17

17

Pneumothorax

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    • Lonchell

      523d

      Hi Gina, Thanks for sharing your story. It's wild how your life can change in a blink of an eye

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    • Lonchell

      523d

      Hi Gina, Thanks for sharing your story. It's wild how your life can change in a blink of an eye

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    • GingerHair

      562d

      I’ve had 5 pneumothoraxes from age 24 through age 42. After 3 on one side doctors will want to staple that lung to prevent future collapse on that side. I smoked all my teenage years and into adulthood. After I had my lung stapled I never had another collapse. I did continue to smoke but eventually quit when I was diagnosed with emphysema. Smoking sucks and has adversely affected my life but I blame myself.

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      • Wess

        562d

        @GingerHair that's very unfortunate but I'm glad you haven't had any more issues. Smoking is very detrimental, I'm glad you were able to quit. I never smoked so it was very odd how i had 2

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        • GingerHair

          562d

          @Wess Thanks Wess. At 24 my doctor told me I was a “statistic”. I was a young, tall, slender female. With each lung collapse my chances increased by 25%, then 50%, then 75%, etc. I felt like a walking, ticking (and smoking) time time bomb!

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    • Wess

      611d

      Do you have alpha one anti-tripsin deficiency disorder?

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    • Lonchell

      611d

      Hi Wes, I've noticed while sleeping on my back; that it feels as if my chest is caving inward, and breathing feels like I'm underwater

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      • Wess

        611d

        @Lonchell yes that's how i feel sometimes. Did it ever go away fully?

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    • Lonchell

      612d

      How true

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      • Wess

        612d

        @Lonchell any other questions? Did you find it difficult sleeping on your back or stomach sometimes? When i sleep on my back i usually experience more of the chest weakness feeling and stomach issues

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    • Lonchell

      612d

      Ok, I thought I was overthinking. I feel pressure from time to time

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      • Wess

        612d

        @Lonchell yeah i overthink a lot. It's honestly PTSD for us so it's hard to clear our mind from thinking things are wrong

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    • Wess

      612d

      Sometimes it feels like the pressure from over eating pushing up on my diaphragm or elevation , it's hard to tell. My pulmonologist isn't helpful

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    • Lonchell

      612d

      I've had three. Do you get short of breath at times?

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      • Wess

        612d

        @Lonchell yes even after the pleurodesis however it's not the sharp pain

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    • Lonchell

      612d

      Has anyone experienced a pneumothorax

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      • Wess

        612d

        @Lonchell yes i have experienced two

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