Constant Kidney Pain and Fear of Losing It All

I would be careful about the amount of water you take in because the kidneys at this stage are not as good at pulling fluid from the blood. Also, be sure to limit foods & drinks with high phosphorus, potassium, and sodium. The best snacks are red grapes & blueberries. I've been on a dialysis machine sine 2014....and yes I do periodically feel uncomfortable in the lower back especially when first diagnosed. So ...I would think that one thing you could do is start changing your diet a bit.

I had testing further by a neurologist who confirmed I had stage 3 KD. She just told me to drink a lot of water. I reviewed my lab work and noticed my urine test was tainted. I called and requested it to be done again and this time I will limit fluids before going. The test came back and nothing was said about it. I called their office and asked if their was anything else I could to improve my condition. Her assistant told me my labs were good and of no concern and to keep doing whatI have been doing. Which was to work on issues found in my bloodwork I had done at a Functional Health center in Seattle. Much had improved so keep doing what I have been doing. My initial appointment my. Neprologist told me only too drink a lot of water. I then decided to involve a Naturopath who advised I limit meat consumption and to watch out not too eat too many acidic type foods. Eat more alkaline foods. Doctors! They don’t tell you much. One has too research a lot and reach out to others who have helpful information. I decided to involve a Naturopath an

Thank’s for all the suggestions. I see a nephrologist, he only wants to see me annually. He only does bloodwork, and urinalysis, saying its enough to tell him if something is wrong for more testing. 🤷🏻‍♀️

I have end stage and that's what I was feeling before I got diagnosed so please see your nephrologists it can really help

If you feel like they’re not helping you or not understanding you I would try seeing someone else. My heart goes out to you please stay well

Have they checked for stones or any blockages? Also there is a probiotic called renedyl I went from stage 3 to stage 2 it took 3 months tho.