squigglybeanz

63d

Does anyone else go from mild to almost severe rather quickly? I can run a couple light errands, etc. but then get home and collapse into bed, barely able to move my limbs. I can barely even lift my phone because of the pain/I feel too heavy to move. Sometimes I literally can’t walk and have to crawl to the bathroom. I am trying to determine if this is from CFS or POTS, or both. I think it’s the POTS adding a layer of fatigue to the CFS, but I’m not sure. Anyone else out there relate??

Generalized pain

acute lethargy

Malaise & Fatigue

Chest pain

Acute muscle weakness

Postural Orthostatic Tachycardia Syndrome (POTS)

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

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  • AllieMae

    63d

    Yes, I very much relate to this. I am a student and this same thing happens as soon as I am home from a single class. Doesn’t matter if I slept 8-10 hours (I normally do). My arms get so heavy, sometimes I’m scared to even drive home. It seems to be getting worse. People tell me to work out to strengthen or focus on my gut health, and I’m trying but literally have zero energy to do those things well. The best I can do is walk outside once or twice a week. Anyway, hope you can relate to this some. I’m just starting this journey so really have no good advice to give. Epsom salt baths help me with muscle pain and tightness, that’s about it.

    • squigglybeanz

      63d

      I’m sorry to hear you go through the same thing as well. It’s definitely not your fault. I think CFS is the one disease where exercise doesn’t exactly help lol just being realistic. I’ve had it for about 10 years now. The POTS is pretty new to me, though. Thank you for your reply!!! 🤗

      • AllieMae

        63d

        of course :) glad to find some others who are also dealing with this. I am still working towards official diagnoses for both but it’s taking months

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