i got two sacroiliac joint injections today but my doctor didn't ask or even tell me beforehand, he just kinda did it? i'd been avoiding steroids because i've heard it deteriorated collagen at a faster rate, especially in EDS patients. has anyone at least had luck with pain management with these? and for how long? i'm gonna be annoyed if this is harming me in the long run and it didn't even temporarily help.
Disorders of Sacrum
Ehlers-Danlos Syndrome (EDS)
I had one in my shoulder about 3 weeks ago. It got rid of my bursitis but didn't help everything. I also have minor tears in my cuff that still are killing me. My doctors have been trying to get me to get injections since 2010. I avoided any injections aside from when I broke my knee in 2013, until now. I feel a lot better and I'm going to get some trigger point injections on the 20th around my shoulder blades. After that I'm going to look for other solutions. My doctor is going to help me pursue replacing my connective tissue in my right shoulder with donor tissue. I have to jump through hoops for that of course (one being the injections) but I'm hoping within the next 2 years I will have a "new shoulder".
oh my 😧 i didn't even know connective tissue could be replaced with donor tissue... that's amazing! sucks you have to go through so much to get to that point though. hopefully it doesn't take longer than the 2 years you're anticipating.
I work for a shoulder for a shoulder surgeon at an orthopedic practice, feel free to PM me with any questions! Best of luck for your expedited recovery 🙏
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