See Alike in...

Alike App

Browser

MommaJo

682d

I found out at age 35( I'm nearly 73)that I had bilateral kidney disease,bad.Had both upper poles removed after treatment if two years. I've been fighting anemia since age 4,not knowing why back then. I can't keep my numbers up,even with taking an Iron supplement to every day Anyone have any suggestions as to to other treatment that my nephrologist may listen to? I'm tired of not having little to no energy. I've concluded that CKD has effected my heart.No scientific research on this.Just putting 2+2 together. The National Kidney Foundation has no answers.

Top reply
    • Easterbunny

      676d

      šŸ™

    • Easterbunny

      676d

      šŸ™

    • MommaJo

      682d

      I've even asked for a B12 shot,but, didn't get it.

    • DaniBear

      682d

      iron supplements did nothing for me. i got iron infusions and epogen shots regularly.

      • MommaJo

        682d

        @DaniBear How low were your numbers? Mine aren't that low.Like 11.7 but other kidney numbers are off chronically,but,no one listens.Just tell me to take otc iron and diet.. I've done this all my life and I'm just tired of hearing the same thing.You know,if you keep doing the same thing and expect different results, do something different? Why don't Drs understand that?

        • DaniBear

          682d

          @MommaJo yeah 11.7 actually is on the okay level for hemoglobin. the scale on my tests for good goes from 11.5 to 15.8. mine was always 8 to 10 on dialysis so diet changes or pills wouldnā€™t help me at all. sadly i kind of agree with your doctors since your level isnā€™t too concerning. diet is a huge part of kidney health and is half the battle with chronic kidney disease.

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion