Sweettooth

239d

What treatment/ type of doctor has helped you the most?

Postural Orthostatic Tachycardia Syndrome (POTS)

Lidocaine

Sodium Chloride

Atrial fibrillation

Midodrine

Metoprolol

View all
  • Lkbmotion

    238d

    My cardiologist by far. He prescribed me Midodrine which has greatly improved my life and deceased my symptoms. He's also just a cool person which helps

    • Sweettooth

      237d

      that’s amazing! I’m happy for u! Where is ur doctor located? I’ve had bad luck w cardiologists

      • Lkbmotion

        237d

        UCSF Medical Center. San Francisco

    • Avery_18

      224d

      definitely my neurologist!! She was the only one to actually listen!

  • horseylov143

    237d

    My Metoprolol + my cardiologist has changed my life. I also get sodium chloride iv infusions 2x a week and they definitely add to it. I tried midodrine, but i didn’t find it helped as much :)

    • Sweettooth

      237d

      amazing!!! It’s so great you’ve found good ways to manage? Where’s your doctor located if you don’t mind me asking?

      • horseylov143

        236d

        my doctor is Georgios Hartas in Los Angeles. He specializes in pediatric cardiology and pots for people of all ages!

  • AudaCity

    237d

    My interventional pain management doctor! She's the only one who's been able to make a dent in my pain levels in over a decade.

    • Sweettooth

      237d

      that’s so amazing! I’ve never heard of that kind of treatment. What kind of things do you do?

      • AudaCity

        237d

        she does ultrasound guided cortisone/toradol/lidocaine injections and also manages my pain prescriptions and PT and stuff as well as recommending new splints or braces to try out to keep me from over extending. She's so cool and she also always has an underwater video playing when it's injection time and it's so soothing.

  • grp

    225d

    Sacral cranial therapy is amazing

  • hazyeclipse

    225d

    I see a cardiologist. I haven't gotten that much help/relief though. I don't respond at all to water/salt/compression, or to the meds I've tried for the most part. Midodrine used to help, but not as much anymore now that I'm severe. I'm worried that I'm a lost cause, because it's really bad

  • SebtheCrow

    225d

    Truly, my GP has helped me so much, from prescribing meds to helping me find specialists that can give me more pinpointed care, he’s been incredible 🥰

  • smokey64

    223d

    Hi I have atrial fibrillation and my doctor wants to operate to close my valves that's leaking blood

  • smokey64

    223d

    👍

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