wise

268d

Hello. Anyone else out there with 10+ diagnoses? I never find other people who have even half as many issues I have. I have four perfectly healthy siblings btw, I just got the absolute bottom-of-the-barrel genetics I guess 🤷‍♀️ anyone else the failed experiment of the family?

Long QT Syndrome (LQTS)

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  • Mouser88

    242d

    My little brother passed away from SIDS. It’s never been confirmed but there are studies that say SIDS may be linked to long qt. And I also have it

    • wise

      241d

      that's interesting! it would make sense though, a lot of people's "first symptom" is sudden cardiac death, but there's no way to test for long qt on a dead heart :/ individual genetic testing MIGHT provide some insight, but there's just no justification for it if there aren't any other members of the family with congenital LQTS that could help identify which specific gene mutated

    • wise

      241d

      do you have symptomatic LQTS?

  • Mouser88

    242d

    And - yes! I have a ton of issues. Psoriasis hashimotos lung problems potential lupus or Sjogrens diagnosis we’re trying to figure out now. Chronic hives. Ugh

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