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Living with Multiple Diagnoses: Anyone Else?

wise

769d

Hello. Anyone else out there with 10+ diagnoses? I never find other people who have even half as many issues I have. I have four perfectly healthy siblings btw, I just got the absolute bottom-of-the-barrel genetics I guess šŸ¤·ā€ā™€ļø anyone else the failed experiment of the family?

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Long QT Syndrome (LQTS)

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    • wise

      743d

      @Mouser88 do you have symptomatic LQTS?

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    • Mouser88

      743d

      And - yes! I have a ton of issues. Psoriasis hashimotos lung problems potential lupus or Sjogrens diagnosis weā€™re trying to figure out now. Chronic hives. Ugh

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    • Mouser88

      743d

      My little brother passed away from SIDS. Itā€™s never been confirmed but there are studies that say SIDS may be linked to long qt. And I also have it

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      • wise

        743d

        @Mouser88 do you have symptomatic LQTS?

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      • wise

        743d

        @Mouser88 that's interesting! it would make sense though, a lot of people's "first symptom" is sudden cardiac death, but there's no way to test for long qt on a dead heart :/ individual genetic testing MIGHT provide some insight, but there's just no justification for it if there aren't any other members of the family with congenital LQTS that could help identify which specific gene mutated

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ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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