Seems I have profound neuropathy. At least that's what one doc says. Have had so very many tests! Now absolutely nothing from docs! Total silence. 😠 Does anyone suffer from neuropathy? I have learned through my own studying that RA & neuropathy go hand in hand. What does this evil disease feel like to you? The numbness I understand but the pain! Oh god the pain! Even vicious cramps, Charlie horse like cramps, only worse. Makes my feet look like something out of a horror movie. Then the newest, cramps that affect an entire leg. The pain is more than I can bare but nothing works! Looking for advice please. Thank you!


Rheumatoid Arthritis (RA)

Chronic Generalized pain

Generalized pain

Fibromyalgia (FM)

Abdominal Distention

Arteritis, Vasculitis


Restless Legs Syndrome (RLS)

Chronic Backache

Chronic Abdominal Distention

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    I have been told by 1 dr i have it and by another i dont have it. I do have numbness down the sides of both legs and all my toes. It is worse now than ever. Yes I have pain and cramping but mostly on the L side. I just had back surgery 2 weeks ago. The dr said it may take months for all of my pain to subside. We will see. Have you tried diclofenac gel for the pain or gabapentin?

    • TabbysMom


      Gabapentin yes. I hate it! Makes me drunk. Can barely walk. Gel no. Thank you for your input! Pray your healing is faster than expected.

  • Marjo


    Yes I have both RA and Neuropathy of hands and feet on outside thighs. Hands & feet always cold : poor circulation. Flares include whole body pain and restless body! Lyrica, Hot Shower/bath seems to be the only thing that will stop it! Always Flares at Bedtime, I attribute to doing too much, can also just be hand, shoulder, arm pain! Severe fatigue is a controlling factor day to day struggle! Started Mehaltrexate; experiencing side effects. Any suggestions for RA medications?

    • TabbysMom


      I just can't tolerate the Lyrica. I can barely walk when I take it. I'm not sure what asking about RA meds but I take Humira injections once a week. Thank you & may healing be yours!

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