Reli

307d

How did you convince your doctor to refer you to a geneticist? I have extremely high iron and several other symptoms of HH, but my doctor wants to send me to a GI for the abdominal pain instead of / before allowing me to get genetic testing. I’m down 130lbs in less than a year on accident and my blood sugar is being affected. I don’t really feel comfortable waiting for a GI to rule out a bunch of stuff before getting tested for HH.

Disorders of Mineral Metabolism

View all
  • ToeKnee

    307d

    As I've stated in your other post there's no set way. Usually doctors will say I don't think that will help or someone that but you still have control. "Say something like can I get just get the referral" but if you're not happy with your doctor you can always switch providers. Geneticists are usually a last-ditch effort to find anything that they couldn't pick up with the at least that's my understanding.

  • Monkey1980

    265d

    I just kept getting bloodwork at urgent cares over time showing elevated iron and went to a hematologist as a self referral which my insurance allowed and they tested me for the HH along with a bunch of other stuff at first meeting.

  • JD31MC

    248d

    Just found out I had this in March. The level are supposed to be between 30-400. My level where high than 1700. They say the only treatment is testing your iron levels weekly and give a pint of blood weekly to bring your levels down. Just wondering if that is what other people are doing? Also what organ is it effecting? For me it is my liver.

    • Monkey1980

      248d

      yup phlebotomies is only treatment. Hopefully you have decent veins. I have awful veins so I had to get a port for treatments and bloodwork etc.

  • Lucy13

    238d

    I would go ahead and go to a gi doctor. They will do an upper gi and a lower gi

  • Lucy13

    238d

    They both don’t feel good but it is the best thing for you to do. I am sorry to agree with your dr

  • Blonde614

    238d

    Get a second opinion.

  • Lucy13

    220d

    Ask your dr for a referral. If he won’t give it to you go to another dr. It is not up to them to tell you NO. This is my opinion I don’t have any problem with my dr. I tell her my problem and usually she tells me. If not, I tell her. She is s super dr

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.