Johnwcu

327d

How do you deal with the stress and fatigue?

Multiple Sclerosis (MS)

Symptoms Involving Nervous & Musculoskeletal Systems

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  • Nicholas_Ice

    327d

    I spend a lot of time painting w/ oil and acrylics. Very soothing. With fatigue that’s a little harder to combat :/

  • Johnwcu

    327d

    Ok. I am going on retirement disability by the end of the week. It’s just getting hard to keep my balance at this point.

  • Nicholas_Ice

    327d

    I’m actually in the process of figuring out if I’m going to go on disability as well. My balance and just my reaction time with everything has worsened.

  • Johnwcu

    327d

    Yeah I know the feeling. The worst for me is early morning and after dinner

  • Nicholas_Ice

    327d

    I hate this disease. I do t like the feeling of ppl thinking I’m just making up these symptoms. As if I have something to gain. Honestly the one thing I regret is being able to touch things with my hands and fee normally. My hands have been numb pins and needles for the last two years.

  • Johnwcu

    327d

    My feet are the same way. They go numb. My hands are starting to that

  • Nicholas_Ice

    327d

    That’s so trippy because my feet are starting to slowly become numb. We are exact opposite lol

  • Johnwcu

    327d

    Yes. It really bad when I take off my shoes

  • Nicholas_Ice

    327d

    Do t even get me started on going to tie my shoes. The coordination w my hands sucks. It takes me like a full minute to get my wallet out of my pocket and go through it

  • Johnwcu

    327d

    Tying shoes is bad for me too. When where you diagnosed with MS

  • Johnwcu

    327d

    Me it from 2018

  • Johnwcu

    327d

    But they seem to think I had it over 15 years

  • Nicholas_Ice

    327d

    It was 2018 for me as well when they made the diagnosis but the lesions on my brain show that I had a flare up when I was younger that didn’t make itself really know until I was in my late 20s

  • Johnwcu

    327d

    Yeah my showed me when I was on a family trip down in Mammoth Cave Kentucky. My daughter and wife had to help me out of the cave

  • Nicholas_Ice

    327d

    Ugh I’m sorry man that’s unfortunate to have it go down that way. I randomly woke up before work feeling like what I thought was vertigo. Every which way I would move I would get her nausus.

  • Johnwcu

    327d

    Thanks

  • Johnwcu

    327d

    What is your worse symptoms

  • Nicholas_Ice

    327d

    I would say its my speed and reaction time with stuff. It has also gotten so bad I wasn’t able to grip my steering wheel and drive.

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