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Hi! I was just diagnosed with Kleine-Levin Syndrome and I’m kinda freaking out. Does anyone have any words of advice for me? I’m very nervous.
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Symptoms Involving Nervous & Musculoskeletal Systems
Recurrent hypersomnia
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Don't feel bad about how often you're out cold and have to cancel plans and don't feel bad for how forgetful you may be. also make sure the people in your life know not to take it personally when you're a bit of a bitch to them 😅 my partner has KLS too and his episodes are ROUGH, but his boss is super understanding and I don't take it personally when he snaps at me because he doesn't even know he's doing it and never remembers conversations we have if he's not 110% awake. maybe also keep a bunch of snacks by your bed or make sure you have a spotter to keep you safe when you're up and half sleep walking. partner and I have both injured ourselves trying to prepare food in a hypersomnia episode
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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