I’m in pain and getting out of bed is really difficult lately. I am able to do a chore, then I’m exhausted.
Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)
Chronic Generalized pain
We’re you able to get disability? If not how do you handle work? Any tips? I’ve been fired recently because of health reasons and I don’t know what type of job to look for.
I work with a vocational rehabilitation person. I’m not currently working a job. I graduate from college this month.
God yeah, I'm trying really hard to get on disability or something, I need to move by the end of the summer but I won't be able to afford it and I know that even if I manage to get a work from home job I could do from my bed it would still use more spoons than I have
I understand. I have fibro, Iih, and cfs and I was recently let go from my work from home job and I just feel like if I can’t keep one of those, disability is my only option. But I talked to my doctor and they don’t think I have enough supporting documentation. So I’m moving back in with my parents and trying to work on some health things while I look for the job that will work with me. 🙄 I’m just tired of everything being so difficult.
that sounds so difficult I'm sorry. I have cfs and chronic pain and while my case worker seems optimistic that I'll be able to get everything I need with a Lupus diagnosis, like they're suspecting I have, I'm terrified i don't actually have it and will have to start at square one again or that they won't put me on disability and won't get to be independent of my parents. She suggested that I make sure to insist that I can't work with my disability from the very beginning of applying to the very end. But I have no idea if that'll actually work when the time comes
Don’t get too hard on yourself! I can only do about one chore at a time, and I can’t socialize for more than 4 hours without being absolutely exhausted. It’s a symptom, and it comes and goes <3 I hope you get some relief soon
I’m dealing with the same things. It’s so frustrating to do one chore then feel so wrecked afterwards. I got a glutathione IV a week ago and I don’t feel much better day to day, but I’ve noticed that I can do more activities while staying at the same level of symptoms. I’m not sure what types of pain you’re dealing with, but I have really bad muscle aches which make up the majority of my physical pain. I recently started using a cbd balm for muscle pain that I apply very liberally, haha, and it’s been helping too. Hope any of that helps you💛
my parents don’t understand my CFS and i’ve been called lazy all my life for doing one thing and then resting, but i physically can’t do anything else
That sounds very challenging. I’ve been misunderstood as well because of my cfs and mcs. Lately, I’ve been working on loving myself more when I need support and others don’t really understand what it’s like in this body. It’s not easy for anyone to really get it unless they’ve actually felt that way. Heck, even I have trouble believing it’s not in my head some days-I absolutely know it’s not, it’s just so far from healthy that it boggles the brain that there are so many symptoms, and that you feel so darned exhausted.
You’re not alone and you deserve to be heard and believed.
thank you, you are so nice. sometimes i also feel like i make it up in my head
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