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490d
Hey guys, new to this app. Just wanted to introduce myself. I have SLE, idiopathic intracranial hypertension and hashimotos. Happy to chat to anyone :)
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Thyroiditis
Acetazolamide
Systemic Lupus Erythematosus (SLE)
Antiphospholipid Syndrome (APS)
Pseudotumor Cerebri
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481d
@Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects
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483d
HELLO OTHER IIH PERSON I AM SO SORRY
487d
Hi , how do you find it having IIH
484d
@Izzywizzy definitely hard because of the lack of research and having to advocate for myself when I see drs. I took acetazolamide for a year but I’m off it now as I didn’t like how I felt. How about you?
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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