Introduction and Autoimmune Diseases

Lilspoonie

490d

Hey guys, new to this app. Just wanted to introduce myself. I have SLE, idiopathic intracranial hypertension and hashimotos. Happy to chat to anyone :)

Thyroiditis

Acetazolamide

Systemic Lupus Erythematosus (SLE)

Antiphospholipid Syndrome (APS)

Pseudotumor Cerebri

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Acz

481d

@Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects

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Gaz

483d

HELLO OTHER IIH PERSON I AM SO SORRY

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Izzywizzy

487d

Hi , how do you find it having IIH

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- Lilspoonie
  
  484d
  
  @Izzywizzy definitely hard because of the lack of research and having to advocate for myself when I see drs. I took acetazolamide for a year but I’m off it now as I didn’t like how I felt. How about you?
  
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  - Acz
    
    481d
    
    @Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects
    
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Introduction and Autoimmune Diseases

Lilspoonie

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Acz

Gaz

Izzywizzy

Lilspoonie

Acz

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Introduction and Autoimmune Diseases

Lilspoonie

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Acz

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Lilspoonie

Acz

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