saggee

389d

So I’ve been having strange symptoms regarding random joint pains (besides my hip dysplasia pain) and fatigue but nothing has come up in any of the tests doctors have done and I’m starting to suspect I may have CFS and Fibromyalgia. My mom recently contacted one of my doctors and he said he’s “suspicious when people tell him they have Fibro because it’s so easy to diagnose without tests.” I’ve been back and fourth and no doctors have given me an answer, I’m tired of being told they don’t know and recommending me to more specialists.

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

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  • feellicks

    389d

    so many doctors cant understand fibro or cfs and/or are extremely bigoted. I can't tell you how many doctors I've gone to for someone to even just test me. I'm sorry you are going through this but I promise there's a light at the end of the tunnel. try looking up fibro pressure points and see how many you have, that might give you a little bit of evidence you can use. to me it convinced myself that I needed to get a doctor for it

  • jolyne

    383d

    i'm in the same boat... it sucks to have your REAL & debilitating pain be boiled down to "you just want this diagnosis for a disability check" or whatever. it is so horribly bigoted & shows a real problem in our healthcare system.

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