Mountain

160d

After my Traumatic Brain Injury, I've been plagued by epileptic seizures. After a breakthrough seizure, my medication doses are increased.After my last seizure, I've maxed out dosages on both medications. What happens if I have another Seizure?

Epilepsy

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  • jmr2191

    160d

    You'll play what I used to call medication roulette until you get it right or you're forced to explore surgical options.

  • Mountain

    160d

    Medication Roulette... That rings so true. Do you have any warnings that you're about to have a seizure? Unfortunately I don't. One second I'm fine, and the next, I'm waking up on the floor. It was terrifying at first, but now (as long as I'm not injured from the fall) it's just a reset for another year until I can drive again.

    • jmr2191

      160d

      my aura lasts about 3 seconds, so not much of a warning practically speaking. I ended up running out of drug combinations to try and was implanted with the RNS System last month.

  • Mountain

    160d

    I really hope the RNS System does the trick for you! It's been 2 years since this all started, but it feels like I barely understand it. Thank you for your insight!

    • Ralphiesmama

      137d

      I got the VNS unit a year ago. It still isn’t regulated. It actually causes me pain into my jaw and eye every time it goes off. I really wish the RNS would have been offered to me at the time. Good Luck.

  • dooby

    154d

    I have had alot of head tramua and the brand name vimpat has been controling my eplisey for a long time now.

  • BrandonSay

    146d

    I'm due to get an RNS system implanted soon myself and I'm really hoping to see some majorly positive results from it

  • BrandonSay

    145d

    If two medications aren't working for you, there's a good chance going to another medication won't work either. You may have something known as drug resistant epilepsy

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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