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674d
After my Traumatic Brain Injury, I've been plagued by epileptic seizures. After a breakthrough seizure, my medication doses are increased.After my last seizure, I've maxed out dosages on both medications. What happens if I have another Seizure?
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Epilepsy
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651d
@Mountain I got the VNS unit a year ago. It still isn’t regulated. It actually causes me pain into my jaw and eye every time it goes off. I really wish the RNS would have been offered to me at the time. Good Luck.
660d
If two medications aren't working for you, there's a good chance going to another medication won't work either. You may have something known as drug resistant epilepsy
I'm due to get an RNS system implanted soon myself and I'm really hoping to see some majorly positive results from it
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669d
I have had alot of head tramua and the brand name vimpat has been controling my eplisey for a long time now.
I really hope the RNS System does the trick for you! It's been 2 years since this all started, but it feels like I barely understand it. Thank you for your insight!
Medication Roulette... That rings so true. Do you have any warnings that you're about to have a seizure? Unfortunately I don't. One second I'm fine, and the next, I'm waking up on the floor. It was terrifying at first, but now (as long as I'm not injured from the fall) it's just a reset for another year until I can drive again.
@Mountain my aura lasts about 3 seconds, so not much of a warning practically speaking. I ended up running out of drug combinations to try and was implanted with the RNS System last month.
You'll play what I used to call medication roulette until you get it right or you're forced to explore surgical options.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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