juniperchai

91d

apparently i might have POTS- i had a fainting episode a few weeks ago with no explanation. usually i faint due to medical anxiety, like when getting blood drawn, but this was for no apparent reason. i have a lot of brain fog (been constant for years), and i'm always tired even when i get good sleep (no sleep apnea), so if these are somehow related to POTS then i'd be really glad to finally have an answer.
i'm gonna do the tilt table test in a few months and i'm really nervous... if i have to have an IV in, i'm highly likely to pass out from the terrible anxiety i get from it. then how would they be able to tell if i'm passing out from the actual test? :(

Postural Orthostatic Tachycardia Syndrome (POTS)

Recurrent Syncope

Feeling of choking

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  • TunaGoon

    91d

    The tilt table will make you pass out at a certain time. You might be able to have the test without an iv. I have had one with and one without. You also don't have to pass out from the tilt table. They watch your vitals and you would have consistent elevations in heart rate and a drop in BP. You also can have a negative tilt and still have pots.

    • juniperchai

      91d

      thank you so much, this is very helpful to know!!

  • Lunarr

    90d

    Those symptoms sound like they could be autonomic dysfunction for sure, glad you're getting evaluated so you can get some answers! I feel like passing out in a clinic is actually the safest place to do it lol and it isn't uncommon to do so during this test because of the blood flow changes. If you tell them you are nervous about the test, I'm sure they will be able to help soothe you as well as take that into consideration with the test results. I think it's perfectly normal to be anxious about such a physically taxing test. Just know the medical staff have conducted it before on others and most likely have a good idea of how to take care of you Also, its worth noting that POTS is only one type of dysautonomia and even if your tilt table test comes back negative, you could still be experiencing a different sort of autonomic dysfunction. For example, my heart rate doesn't meet the change requirements for POTS but I still have the symptoms you're describing and more (except mine is pre-syncope) so I carry a general diagnosis of dysautonomia

    • juniperchai

      88d

      thank you, this is reassuring and really helps!! (‘:

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