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619d
hello, everyone. I'm happy to try this app. I hope to find more people like me. My hEDS causes isolation and depression. I don't really talk to anymore near me about it because, they do not understand it. I hope to find people that understand me and possibly help others.
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Ehlers-Danlos Syndrome (EDS)
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612d
I feel the same I feel like I have 3 friends that if I need something would help but they are healthy and work and have normal life I don’t blame them but they rarely call or check any more. I get it I do text them some so I don’t expect them to always text me first but I have other “friends “ that have similar issues and I’m always checking on them but when I reach out they just aren’t there Sorry I’m having a feel bad for me time and going through depression and grief and aloneness
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615d
I’m just now looking into eds and I definitely know I need to go get a diagnosis. I’ve been isolating too. I’m worried about meeting new people and being the only disabled one. I don’t know how people will react :(
616d
I’m the same I’m mostly home
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I just found this app today. I don’t leave my house much unless I’m going to a doctor, pt, or taking care of my sick Mom
618d
Hey! I’m new too, isn’t this cool? I definitely can understand where you’re coming from as I tend to isolate too.
Do you have fb? There are a bunch of EDS support groups.
@QueenSmurf Yes but I do not like the groups on Facebook it’s very disconnecting for me.
It's hard to find people who get it. Glad you found us!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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