I take 600 mg Gabapentin 3 x’s daily and 75 mg Diclofanac 2 x’s daily. I still have a lot of pain in most of all my joints every day. I’ve had a total hip replacement but still have pain. I probably need a knee replacement because I have extreme limitations. I cannot climb stairs, cannot squat, cannot do a lot of things I used to do. My feet hurt so much I don’t go on walks anymore. If I stand for more than 15 minutes cooking, etc., I get extreme neck and back pain. I have arthritis in every joint in my body. I’m very limited in what I’m able to do. My rheumatologist is not very sympathetic to my situation and it’s very frustrating. Has anyone experienced anything like this?
Chronic Generalized pain
I have except mine is in primarily my shoulders. I had a total right shoulder replacement at age 49 which is pretty rare to do at that age but I didn’t have a choice I was bone on bone and unfortunately it didn’t work the way we anticipated and my range of motion is half of what it supposed to be and the pain is still significant. I now have abused my left shoulder too much and I have significant damage to that shoulder as well and need to have that one replaced but I really don’t want to have it done because of how the other one went. I also need to have my left knee done but I can’t have my left knee done until my shoulder is better because I can’t use a walker! I went to a rheumatologist who told me that she can’t help me because it doesn’t show that I have any type of rheumatoid arthritis and I know that I probably do have something going on I just don’t know exactly what but if you’re not in a flareup at the time it’s not gonna show up in your blood work which sucks and I don’t trust the doctors after being told that I probably really don’t know what I’m talking about! My Ortho continues to see me regularly to show that the pain is real and continues to have me do x-rays and ultrasounds every so often for disability proof but again that doesn’t tell anybody anything. I have tried all of the medication‘s and none of them truly work for the pain! So unfortunately my pain clinic doctor is wonderful and puts me on Percocet 7.5 mg four times a day for as long as I can handle it and then we go to oxy for a while and then we go back to the Percocet that is everything that works for me as of right now. I have tried all of the other ways to reduce pain and nothing seems to work. I am not saying that the narcotics work it just eases it up a little so that I’m not crying all of the time. But I don’t sleep well either due to the pain. So sorry for the lengthy post!
FYI if there are any mistakes in this post written wise I’m really sorry it is because I use Siri to speak my posts because typing is extremely painful for me.
I’m sorry your having a hard time with pain and getting your rheumatologist to help you. I’m glad your pain clinic Dr is prescribing meds that help. Perhaps I should try the pain clinic as well.
Also, I find it very interesting that we both had joint replacements but are both still experiencing pain.
Yeah I think it’s hit or miss sometimes with joint replacements as I have found. I would definitely recommend 100% going to a pain clinic because it was the best thing for me but you need to find the right doctor for you. I originally went to one clinic and I thought it was a good match and they weren’t a good match in the end and I found a new doctor and I found out what it was like to have a supportive team on my side! I have never been told by every person at this clinic how much they understand my pain and how much they believe me! Prior to this they were just out to pretend to deal with my pain but this doctor really cares about who I am and what works for me so that’s where I am at. I do take topiramate 50 mg on top of the pain meds and in the past they had given me a much higher dose and it didn’t work but the lower dose seems to help a little bit but I can only take it in the morning if I take it after 11 o’clock in the morning I can’t sleep at night at all! My eyes are closed but my body is wide awake it’s crazy. I also take a muscle relaxer every single night and I am allowed to take it other times throughout the day if I need to for pain to help me sleep which is a miracle for me.
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