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spookyspoonie

543d

is there anybody else out there with moderate-to-severe ME/CFS who wants to make a friend?

Top reply
    • Wednesday_7

      460d

      Hey, I have me/cfs and idk if it’s like moderate-severe, but it is certainly debilitating and sucks ass.

    • Wednesday_7

      460d

      Hey, I have me/cfs and idk if it’s like moderate-severe, but it is certainly debilitating and sucks ass.

    • ClaireAngel

      461d

      New here, suffer with ME and Fibromyalgia, would love to meet more people who understand x

    • kmkrs

      477d

      FM & chronic fatigue 👍

    • murdermittens

      477d

      I have eds and chronic fatigue syndrome. I'd love to.

    • RyeRyeBread

      478d

      I wish there were more ways to group up with fellow ME/CFS people ☹️ We be needing friends ;^;

      • spookyspoonie

        477d

        @RyeRyeBread Saaaame

        • RyeRyeBread

          477d

          @spookyspoonie someone make a group chat or a facebook group lmao maybe a discord, idk something 😂😭😭💜

    • franniepeach

      490d

      Yep 👍 I'm struggling with both.

    • ItsErin

      491d

      Yeah, I'd love to!

    • ForgottenFroggie

      491d

      id love to!!

    • PurpleGiraffe

      491d

      Tired and in pain every day. Would love to meet a new friend.

    • LemonSnicker

      523d

      I’m new, I have Fibromyalgia (and questionably CFS?) I’d love to hear more from people who deal with similar things! :)

      • JustRachelle

        501d

        @LemonSnicker same! I would love to chat anytime

    • RainbowPrincezz

      540d

      CFS here. Would love a friend. 💕

    • MeeB333

      540d

      I have a very long list of medical conditions, including CFS, & a lot of them cause similar symptoms, so I am basically exhausted & in pain 24/7/365…! So, I know how you feel!! :-/

    • TrebleNurturer

      543d

      I have fibromyalgia and chronic fatigue. I’m not sure what ME is. But yes, hello!

      • spookyspoonie

        543d

        @TrebleNurturer myalgic encephalomyelitis (ME) is the sciencey name for chronic fatigue syndrome

        • RyeRyeBread

          490d

          @spookyspoonie [just some notes for anyone seeing these and wanting to be educated lol] ME has different diagnostic criteria, and some believe it's a different disease all together or possibly just on the "worse" end of the ME-CFS spectrum. CFS has a higher chance of being misdiagnosed since the criteria doesn't require the main symptom that distinguishes this illness from others - Post Exertional Malaise (PEM). The CFS criteria is also more lax, whereas the ME criteria is stricter. There is also ME/CFS criteria (where you're diagnosed with the acronym of both, that's sort of a middleman - not too lax but not very strict either --- lots of debates over them in the community) Also, important to note here for others that "chronic fatigue" is not the same as "chronic fatigue syndrome" (CFS) or Myalgic Encephalomyelitis (ME). Chronic fatigue is a chronic *symptom*, one that can occur with numerous illnesses, such as mononucleosis, the flu, depression, etc. CFS or ME, is a debilitating chronic illness with vast symptoms in all body systems (neurological, immune, gastrointestinal, endocrine, etc.)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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