Dealing with Allodynia: Seeking Advice

I get this with hormonal fibro flares. It's like being sunburned from the inside out. I haven't worn jeans in years because of this. I cant sunbathe anymore due to this. My anxiety goes nuts and my skin feels swollen all over like a sunburn. No sun needed. I feel for my sisters in suffering. (And any guys stuck in our boat too)

Yes, and I feel like my skin is crawling! My pain and irritability get so bad that I feel like running through a wall!!!

i never considered that this was a “thing” it happens to me very randomly and it drives me crazy. usually i can’t even put a light blanket on my legs!! i have eds and fm, so good to know it’s an fm thing

I believe I have this too. I was having this weird choking sensation and pain from wearing a necklace for a few days.. I feel my skin burn sometimes even from light touch. It makes me feel crazy

I have FM and this same pain and I don't have EDS. Now that I'm on my FM meds I only have it with flares.

i didn’t know this was a thing i just described it as my skin being on fire

This is a fibro thing. It could be and EDS thing too but I know it’s part of Fibro for sure. It sucks for sure either way

Hi I have FM and recently I had a really bad flare up where my clothing would feel like it was burning my skin and oddly enough the vibration of my phone going off caused me pain.