Stacyda30

174d

Hello, my name is Stacy. I am 39. I have extreme syncope. I am passing out sometimes 10 times a day. The doctor's don't know what is going on. I am unable to work, drive, and be left alone. This is causing severe depression for me as well. I probably give myself a concussion at least every two weeks from passing out and hitting the floor. I lost my health insurance because I am unable to work. I don't know what to do.

Recurrent Syncope

Restlessness and Agitation

acute lethargy

Low Mood

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  • gastro_sleepy

    173d

    Have you had a tilt table or( this will sound weird) G.E.S test done?

    • Stacyda30

      173d

      Yes it was normal, my eeg, brain mri, and heart cath were all fine. The only thing the heart cath showed was small vessel disease. I am even taking a pill for syncope and it's not working.

  • Bri4937

    173d

    I have vasovagal syncope and I have periods where I go months without an episode but now I have been having them daily for the past few months and can’t be left alone or drive either. Beta blockers helped a little but prozac was the biggest help for me. Does yours get worse with certain triggers such as leaving the house, standing, or heat? Or is it completely random?

  • Stacyda30

    172d

    They are completely random, I will pass out even when I'm sitting down.

    • Bri4937

      169d

      that rules out orthostatic related syncopes which includes most of the dysautonomias except vasovagal syncope. I have that and I get episodes sitting down as well. I found a YouTube video of someone who sounds very similar if you want me to message it to you. Have your doctors ruled out vagus nerve dysfunction or a neurotransmitter imbalance? I’d be interested to know if you feel alert before a spell or if you feel calm/tired.

      • Stacyda30

        169d

        Sometimes I can feel it coming on, I get very tired before hand and really tired afterwards. I'm also very dizzy. Now even when I move my eyes I get this weird feeling in my head and extremely dizzy. Unfortunately I don't have health insurance anymore so I'm kinda stuck. I can't keep living like this much longer.

  • MomofRock

    171d

    😥I'm so sorry to hear this. The majority of Mt Syncope was due to gastrointestinal issues. I'm on Benefiber at least once a day, sometimes twice a day. I'll be praying!!!

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