captainfantastic

234d

guys i'm so done, i thought i was getting better and making progress but now i'm in a terrible flare up and things are getting worse again. i don't know if i can handle it this time, i just want to be normal and it's not happening.

Postural Orthostatic Tachycardia Syndrome (POTS)

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  • butterflylov3r1233

    234d

    i totally understand this. i wish i knew what to say to help but i don’t. just know you are not alone and progress isn’t linear. things have to get bad so we can see the good. trust in that ❤️

    • captainfantastic

      233d

      thank you 🧡

  • 911Medic19

    234d

    I feel this. I am going through the same thing right now and not getting any help. 😥

    • captainfantastic

      233d

      i'm so sorry it sucks

  • Sunnymoon

    234d

    I’m really sorry that things are feeling worse again. It’s frustrating when the body isn’t functioning like it used to/what we’re used to. You’re not alone in this pain even if it feels that way. Is there anything that makes your symptoms or your mental status feel even a little better during times like these?

    • captainfantastic

      233d

      i'm kind of stuck in between, the things that make this better make the other things worse unfortunately but i am doing my best thank you for your support 🧡

  • WhiteRaven

    232d

    💕😥

  • Lkbmotion

    230d

    I totally understand the feeling ❤️ try to hang in there. We all believe in you!

    • captainfantastic

      229d

      thank you 🧡

  • hazyeclipse

    229d

    I can relate. I don't have flares per se, as I'm symptomic all the time but some hours or days are worse than others and when it gets really bad it feels like I'm literally trapped, imprisoned in a body that doesn't doesn't right and that feeling is downright awful. It's just hard to come to terms with the fact that this is the body I got, and I can't make it be healthy. I might continue to feel sick every day all day for literally the rest of my life. It's definitely not easy to come to terms with this kind of stuff.

  • grp

    226d

    Sacral cranial therapy really helps

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