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713d
How many surgeries has everyone had since being diagnosed with Endometriosis?
2
19
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Endometriosis
Generalized pain
Soft Tissue Cancer
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707d
none. my insurance wont pay for it plus im only 17 :( im trying to get a job so i can save up to get it though
3
706d
4 and it was not awesome.
0
Two, I had a hysterectomy and following that I grew a benign tumor I had to have surgically removed.
Just the one. Saw the best surgeon I could find so I can save money over the long run having fewer surgeries. I have insurance for $400 a month and paid $7500 total for surgery out of pocket.
None. Can't afford it :(
@hazyeclipse I’m so sorry 😭. how have you been managing your symptoms?
@1lovemyheatingp8d I take aygestin, which is a higher milligram formulation of birth control that's often used for endometriosis. It works fairly well but it's expensive when tacked on to my other meds, and I think it's causing hair loss :( I have no choice though, without it/with normal birth control (which used to be enough to make me able to live with it) my symptoms are intolerable.. like completely out of hand. It's basically just a bandaid/just masking the issue but I guess it'll have to do for now
1
✋ Sadly, I had my 10th in 2021.
@Pug_Mom oh my goodness! 10?!! That is a lot 😭
@1lovemyheatingp8d I swear it never ends. 😥
712d
About to be two. My next one is in June. I had excision surgery back in the beginning of 2020 and my symptoms are coming back :(. I was diagnosed with DIE
@SarahBeara what is DIE if you don’t mind me asking
708d
@1lovemyheatingp8d Deep Infiltrating Endometriosis
@PacoPeep Did the hysterectomy take away all the pain?
@1lovemyheatingp8d pardon my mouth but hell no!!
2 since being diagnosed. I was one of the lucky ones. I was diagnosed a year before my first surgery which was excision/aborted hysterectomy. My second surgery was a complete hysterectomy done 4 months after the past one. Feeling better today than I have in so long
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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