Looking for Support with My Neurofibromatosis

I have NF 1 too

I am 41 with NF 1, from NYC and I am new to this app.

Always happy to share

NF1, 42 year old female, struggle is real. Happy to talk if you need.

Hey I am Andrew , I have NF1 please message me, I also have stage 4 cancer brainstem 🤷🏼‍♂️ but I am doing good!

I will share what I know I have had nf1 for 39 years and I have 1 daughter that has it. Also open to hear what other people do for their pain and everything that comes along with it. For instance I have been loosing my hearing in my right ear over the last couple years but has been getting way worse recently.

I will share and talk . I have had NF for 36 years

Me too! I’m 28 and have been feeling with it my whole life. I have always wanted a relationship, but due to NF, that has yet to happen.

I’ve got NF!

I have NF and I have 1 child that has nf too

i have had 3 close friends with NF

im struggling with NF too. you can always talk to me

I’m always happy to share my experiences with NF.

If you ever want to talk, I’m struggling with NF and I just moved so I’m going though some stuff with that too. I’m here.