Ferrari

450d

Does anyone experience twitching ?? Like all over ? I went down a rabbit hole and convinced myself it could be ALS I'm just really freaking out

Chronic Generalized pain

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  • AlwaysInPain82

    449d

    Yes and I recently found out it's MS. Be very careful about diagnosing yourself.

  • AlwaysInPain82

    449d

    It could also be side effects from your medications, just be careful and it's never helpful to get really upset over what you "might have". I've been down too many rabbit holes myself.

  • Painsucks320

    449d

    I get tremors if that’s the same thing. And muscle spasms. We (my doctors)have no idea what’s happening rn. I actually came to that conclusion too. If it’s causing anxiety just put the phone down for five minutes.😔 I think it’s healthy to look up your own health symptoms. 💕

  • AlwaysInPain82

    449d

    It's healthy as long as you use that info correctly. It's easier for me to do because I have some education in medicine but not everyone has that. The ability to advocate for yourself is VITAL with chronic pain because we are a liability to doctors and they aren't going to want to treat us with controlled meds which are the only effective treatment for people like me. This is one reason why I'm part of Don't Punish Pain Rally and other pain & disability organizations.

  • Deli

    441d

    I used to twitch. I wouldn’t notice it during the day but when I’d lay down at night all over my body randomly, but not excessive. At that point in time it coincided with low zinc, magnesium and thyroid. Not sure if it’s tied to all three or just one of them but when I corrected those levels the twitching for me went away.

  • YouCantSeeMyPain

    440d

    I did the same thing, it’s been hard to put and keep my hands up and I checked with Dr.Google and got ALS and freaked! Which also didn’t help cause I got so stressed out I had a flare up. What I’m doing is putting my symptoms down bring it to the doctor and show them how the symptoms compare to some diseases/diagnosis and have him diagnose me and run tests.

  • dinosaur2202

    440d

    I have tremors and spasms due to muscle spasticity from EDS and also allergic reactions from Mast Cell Activation Syndrome. The spasms were really bad (we thought they were seizures) before I started treatment for MCAS which is an immune response disorder. It may be worth looking into any allergies or immune responses

  • Fibroteacher1107

    440d

    I get them at the end of the day when I relax.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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