Vexera

222d

What are some things you've done to help you maintain a regular life or career with POTS?

Midodrine

Postural Orthostatic Tachycardia Syndrome (POTS)

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  • Archie13

    222d

    I keep salty snacks in my desk at work to help keep my blood pressure up if I know I’m going to be up and down a lot.

  • Atatizakti

    222d

    I wear waist high compression tights everyday, I’m constantly drinking water, and have liquid iv packets if I’m having an episode. I also just started taking midodrine.

    • SebtheCrow

      219d

      where could I learn more about the iv packs? I’ve heard they help a lot of people but I’ve never found a way to look into getting any. Are they prescribed by a certain type of doctor?

      • Atatizakti

        219d

        no it’s not an actual IV…it’s packets that you mix with water similar to crystal light

      • Atatizakti

        219d

        the brand name is Liquid IV

  • grp

    219d

    Sacral cranial therapy is helping a lot

  • Avery_18

    218d

    I just keep going, I am not one to listen to my body. When I am at cheer and I start feeling bad I go until I pass out, which is a habit I need to break!

  • AudaCity

    218d

    We hydrate, drink soy sauce, and work at a job that is seasonal so we have time to get everything checked out during the off season

  • Avanelle

    212d

    Compression stockings, 2.5+ liters of water a day, salt capsule pills, portable snacks (nuts are good for protein and salt), and also I carry a stool cane I got online for $20. It’s a cane that folds into a stool so if I need to sit suddenly and there’s no chairs I’m always covered. When I was working still I managed to have an understanding boss. I explained my condition to them and asked to not be standing up for periods of time, give me time to switch from sitting to standing, and to give me little breaks so I could hydrate and eat a snack. So sometimes it helps to explain your need for accommodations. If you don’t feel like explaining, I get it lol. Sometimes I print out the description of POTS from the Johns Hopkins website and it gets the job done. Hope this helps 🤗

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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