Bijoux_bean22

265d

Does anyone else get visible muscle twitches? I will be lying in bed and then see the muscle move under my skin. No pain, just really annoying.

Ehlers-Danlos Syndrome (EDS)

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  • Loocifer

    265d

    YUP!

  • tallgirl22

    265d

    All the time!

  • Bijoux_bean22

    264d

    What do you do when it happens? Do you just wait it out?

  • tallgirl22

    264d

    Pressure helps me so using a ball or something to rub it out. I’ve also had physical therapists or friends sit on my legs for the really big ones.

  • Bijoux_bean22

    264d

    Good to know, thanks

  • Emkun

    263d

    YES, I get one in my leg that has been happening for years on and off. So weird.

  • Loocifer

    262d

    Honestly a solid chunk of the time I do wait it out, try to keep a steady breathe, and distract myself. My dog does dbt for my Tourette’s and sometimes he does it for this too and even if it doesn’t always help my muscles it always helps my brain 💕

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