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Frustrated with POTS Diagnosis Criteria

Leaf98

671d

Welp I'm back at the ER I fainted and bonked my head decently bad I'm annoyed though because I was told yet again my hr wasn't abnormal enough for pots though it was steady in 111 to 125s with just a little bit of dipping to regular pulse when the ems came to get me is there an actual threshold number for diagnosis? How far off am I?

2

16

16

Chronic Tachycardia

Cardiac dysrhythmia

Postural Orthostatic Tachycardia Syndrome (POTS)

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    • Smoores

      666d

      Tilt table test is the only way to diagnose pots because once you sit down/lie down, your heart rate returns to normal so they think you’re fine in a hospital

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      • Leaf98

        665d

        @Smoores yeah I've done the tilt table once already and I did faint but the doctors accused me of fake fainting because I never fully went out even though I had a positive test cause my heart rate was wack

        1

        Reply
        • Leaf98

          665d

          @Leaf98 Plus they said it couldn't be pots because my bloodpreasure was up 🤷‍♀️

          1

          Reply
    • MrsHill0625

      669d

      You need a positive tilt table test. That’s what I got to get my diagnosis

      1

      Reply
      • Feliformia

        660d

        @MrsHill0625 i did a tilt table test, and fainted. The doctor proceeds to tell me its normal for "young women" to faint sometimes 😩

        2

        Reply
    • Wondercell

      670d

      Cardiologists have more strict criteria for the heartbeat and the blood pressure for a pots diagnosis then do autonomic dysfunction specialist because they realize there's so much more to it than just that

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      Reply
      • Leaf98

        670d

        @Wondercell I'll make sure I mention that when I get to my new doctor!

        0

        Reply
    • Leaf98

      670d

      Update got a mild concussion 🤣

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      Reply
    • Gunnar

      671d

      Have you been tested for Inappropriate Sinus Tachycardia? That's what I have, but Alike made me put it under POTS

      1

      Reply
      • Wondercell

        670d

        @Gunnar yes that was my initial diagnosis as well but then I realized it was pots and then my symptoms all shifted a little bit and now I'm dealing with mast cell.

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        Reply
      • Leaf98

        671d

        @Gunnar I don't think so my cardiologist still doesn't believe me that I'm actually having these issues haha 😅 I'll be sure to mention it though! I know they did a stress test on me and a tilt table but that's about it

        1

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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