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Shancan99

759d

I was just diagnosed with advanced PPMS in January 2022 at age 34 after 8 years of symptoms. Does anyone else have experience with this type of MS?

Top reply
    • Faroop

      745d

      I was dx with PPMS 3.5 yrs ago. Sx for longer, and my biggest ones right now are pain, tremor, fatigue, cognitive impairment. Others include urinary incontinence, constipation, walking problem (I use cane and sometimes scooter). Gradually getting worse and losing ability sucks. What meds are u on? DMT?

    • Faroop

      745d

      I was dx with PPMS 3.5 yrs ago. Sx for longer, and my biggest ones right now are pain, tremor, fatigue, cognitive impairment. Others include urinary incontinence, constipation, walking problem (I use cane and sometimes scooter). Gradually getting worse and losing ability sucks. What meds are u on? DMT?

    • arl

      746d

      I have RRMS too

    • arl

      746d

      Yes! I was dx on 2009. After an entire lifetime of symptoms, Optic neuritis, tremors, burning leg, and arms, all of it. Every doctor made me feel like I was a Wack job.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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