Any tips on how to get mobility aids and deal with the looks/comments that might come my way? I've been looking at getting a wheelchair for a while (I already have a cane but it ends up hurting my arm) but I don't know how to do that without the people around me making me feel guilty for it.
Ehlers-Danlos Syndrome (EDS)
Hello love. I have dealt with the same issues. I used to use forearm crutches but they wrecked my arms. I finally got a second hand wheelchair from ebay. This was before I was granted disability benefits. You might try searching around for mobility aids from local disabled folks. We like to help our own. The man who sold me my wheelchair ended up just giving it to me. As for dealing with the reaction of those around you...all I can say is it will be hard. But wheelchairs are mobility aids just like prescription glasses. They're a necessity to add quality of life. Hold your ground. Don't let anyone bully you into feeling like you have to suffer just to make them more comfortable. Find a support group. Much love and many hugs for your journey.
I got my wheelchair by asking my doctor so insurance covered it. Reminder: you owe nothing to anyone. You don’t have to discuss your disability or why you’re using a mobility aid. You owe no one an explanation. Never feel bad for improving your quality of life. If friends or family don’t want to listen to why this is a benefit, then they aren’t really there to support you. Never sacrifice yourself for other people’s comfort. If they want to be ableist, that’s their problem not yours. It’s hard to get used to but needing a mobility aid doesn’t make you less of a person and you don’t deserve anyone to make you feel that way. Much love ❤️
Hello friend! I’m a fellow POTS and EDS patient who uses a wheelchair. If someone gives you a hard time for it:
1. You don’t owe anyone anything, including an explanation.
2. You wouldn’t be in a wheelchair if you didn’t need it. The only opinions that matter are those of yourself and your doctor.
3. My favorite replies are “I wouldn’t be using this if I didn’t need it”. “I’m sorry, are we exchanging medical information?” Or just silently roll away.
Hope this helps!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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