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JustRachelle

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I am so overwhelmed! All of these symptoms that I constantly have plus new ones.. I’m just tired of all of this. Nobody truly understands expect you all! Im tired of not being able to do things I want to do… I can’t work.. I can’t play with my children like I use too.. I’m just here! I know it’s a blessing “to be here” but that doesn’t make it any better. I know it’s “people in the world who has it worse than me” but that doesn’t make it any better. I just want HELP!

    • HeyReese

      722d

      My whole career fell apart when I was diagnosed with all of this. It’s manual labor & field work intensive. I can’t lift my toddlers. I can’t have any type of fun in the bedroom. I can’t eat what I want. I can pet my dog & snuggle with my cat. I can dress up for fun. I can sit in bed all day 🙃. I can paint/draw, I can spend extra time snuggling with my kids. I can take luxurious hot baths. I can sometimes do fun things and it makes it that much more amazing. I don’t feel blessed to be here most days, but I’m starting to embrace the idea of when I experience something good, saying “I’m really glad I was her for this.” It’s helped. And I list all of the can’ts and then list all of the cans (& try to make more cans 😉) Also, it’s absolutely valid to not want “to be here” sometimes. Especially on those really tough days. I let myself have those days. Days where I want to tap out, I do as much as possilble. I phone a friend or watch a funny show, read/listen to a good book to escape. I sleep. A lot. Lol. But you’ve got this. Symptoms may not change, but you will get better at managing them, I promise. Much love friend!

    • CrazyHiefer

      728d

      I found things I could do. Idk the rhyme or reason, but my job is something I can do. Any other job no matter how boring or easy couldn’t get me to keep it. I am a paraeducator and always stimulated and never bored. There is t time not to do things. That has helped me immensely. But I’m still a shit show at home. My partner reassured me she can take care of it but wow it sucks. I don’t have kids but for my dog I put her in doggy daycare everyday for exercise and she is happy. I’m really sorry you’re in this situation. It fucking sucks to want to do stuff and not be able to do it at all.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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