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Tailor

715d

I'm a dancer. Have been for 12 years and I'm double majoring in college next year with that as one of the two paths. I auditioned for the program and did not make the cut so I will be taking non major classes. While this is totally fine and reasonable, I'm not sure my body will be able to keep up. While I was auditioning, in the last half hour of the 2 hour performance, my ankle completely turned on me and remained injured for a month, nearly. I am informally diagnosed with EDS and formally diagnosed with hypermobility issues. It has always been my biggest dream to pursue dancing. It is my therapy and way to express myself and I couldn't live without it, but I feel like my body is starting to fail me lately... I am only 17 and all I want is to be able to dance. I knew as I got older that would be taken away, but I didn't think I had to worry about this for a good many decades... I guess I'm just looking for somebody to tell me it will all be okay that finds this relatable.

Top reply
    • EDSdancer

      549d

      I’m so sorry this is happening to you, but I’m happy to see how many people know what we’re going through. I had to leave college last year to go seek medical attention and I was diagnosed with EDS. Before that, I was a captain of my college team and dance was my favorite part about school. My mom told me that I should just stop dancing if it was causing me that much pain, but I don’t think I would want to be alive if I couldn’t be a part of this team. I’m back at school now and doing only what my body feels good doing, luckily I have the sweetest coach and she understands that me cutting back on how much I dance mean I can be on her team longer. I am here to talk if you need it ❤️ we can also discuss pain management strategies

    • EDSdancer

      549d

      I’m so sorry this is happening to you, but I’m happy to see how many people know what we’re going through. I had to leave college last year to go seek medical attention and I was diagnosed with EDS. Before that, I was a captain of my college team and dance was my favorite part about school. My mom told me that I should just stop dancing if it was causing me that much pain, but I don’t think I would want to be alive if I couldn’t be a part of this team. I’m back at school now and doing only what my body feels good doing, luckily I have the sweetest coach and she understands that me cutting back on how much I dance mean I can be on her team longer. I am here to talk if you need it ❤️ we can also discuss pain management strategies

    • teeny

      695d

      i went through nearly the same thing around the same age, i’m so sorry this is happening to you. grieving your passion is such a hard and long process and i wish you so much peace and support along the way

    • goblin49

      710d

      Dang this post hit me so hard because I was in a very similar situation going into college. I danced my entire life, I was told by my doctor it was probably a bad idea to keep dancing with my joint issues (I'm trying to get genetic testing this year for eds) and that I should find another way to exercise. But I have kept going, and this year I will be artistic director for my ballet org on campus. It is harder than the average person to keep up with dance sometimes, but I understand that pull that the art has on you, you can't just stop. Especially since you are taking non-major courses, keep in mind that dance is fully for you now. You don't have to over-exert yourself, or have the highest extensions in class, or be the strongest jumper. I hope this fact will help you continue dancing without feeling like your losing a battle against your body. In addition, I would be super upfront with your dance teachers about what is going on. And stand up for the reasonable accomodations you need. I know teachers can be stubborn sometimes, so informing them before classes start usually helps establish a good relationship without any judgements from meeting/seeing you in class. Hope this helps and feel free to chat week with me!

    • Student_girl

      715d

      Yeah I don’t have anything good to tell you either. I’m 18, walk with platform crutches, have had 5 surgeries. It hasn’t gotten better for me, only worse. Sorry and good luck

    • Lilac_Night

      715d

      I'm 20 and was diagnosed with eds in my junior year of high school. Id like to tell you it will be okay but it really does just get worse from here. Im currently looking into mobility assistance because regular walking and standing takes too much effort and pain. I cant even walk across my college campus (which is only 1 block wide) without feeling like ive been kicked in the shins multiple times. Im sorry

      • Tailor

        715d

        @Lilac_Night Hey, at least you are being honest with me, there isn't anyone around here who can really tell me what the future holds with this condition, so the reality check is appreciated.

        • Lilac_Night

          715d

          @Tailor of course. The hardest part of it is the staying positive. The pain and aches last forever and continue to get worse and there is no cure. Life sometimes feels like its pointless but the key ive found when your passions are hard to do and actively harm you is to fall in love with life. The beauty of nature and all the things around you. Looking at small details on buildings and people watching.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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