Struggling to Get an Endometriosis Diagnosis

I just want to say I relate to feeling lost and confused and like there’s no help! I haven’t been diagnosed either, but I have to just assume I am because I have yet to meet a doctor that takes me seriously.

Are those diagnosed with an ultrasound? I had a pelvic ultrasound done and it came back normal

Have you looked into fibroids? I have both endo and a large fibroid so its difficult to tell which affliction is causing which symptoms. My pain went from one day a month to every day and I think the fibroid has contributed to that

you're right, it's not true to feel like that or only on your period. the average amount of time it takes someone to get diagnosed with endo is 8-10 years. advocate for yourself and don't feel like you're being pushy or too much, don't let them make you feel stupid. pelvic pain is not normal. you should not have to just live with it. i'm working on advocating for myself too, my pelvic physical therapist told me to advocate for myself too, after having this pain for about 8 years and getting horribly worse the last two years. i've done pelvic physical therapy, been on gabapentin meds multiple pills 3 times a day, birth control to stop my periods for 2 years, and still in SO much pain and currently on my first breakthrough period of 27 days so far. advocate for yourself, i know it's hard, i'm doing the same, but advocate for yourself so much. if they don't listen to you, find someone else

I was diagnosed with endo the same time I was diagnosed with PCOS via pelvic ultrasound. My PCP at the time told me that she suspected endo due to my heavy, erratic periods, really bad cramps, pain during s*x, but the main symptom I had that screamed endo to her was that I got really bad diarrhea around my period. Whatever is going on with you, endo or not, it sounds serious. If possible try going to the ER or finding another OBGYN to go to. I know those things aren’t possible sometimes, but I really think you need another opinion. I hope you find someone who takes you seriously and helps you find answers and relief!